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#LongCovid

142 posts96 participants15 posts today

Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 9 - 15.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

s4me.info/threads/news-in-brie

Note: Due to a software upgrade the forum has a slightly different look.

@mecfs

Science for MENews in Brief - June 2025This thread has a Science for ME 'News in Brief' post for each week in June 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Weekbericht 2025-23 over status & is gepubliceerd:

locovid.nl/oversterfte-ziekte-

Na 3 weken >30% stijging p week in het virusniveau stagneerde dit afgelopen week. Maar dit betekent NIET dat de verspreiding nu zal stoppen! Volgende week gaat het weer vrolijk verder, tenzij we maatregelen nemen!

Thema's: werknemers steeds vaker ziek, maar wordt niet genoemd?
En: waarom verplichten bedrijven werknemers steeds vaker om naar kantoor te komen?

locovid.nlOversterfte, ziekte en verspreiding Covid19 2025-23 – Low Covid info & actie

"Just because I wear a mask doesn't mean I'm locked in my house" is an ableist argument
let's not fall into ableism

camaradademian.substack.com/p/

From time to time, there are trends on social media from people who call themselves COVID-conscious. A few months ago, one of the trends was showing everything you could do while wearing a mask. This, in principle, isn't a bad thing, but the problem is that the narrative and the phrases being used were that y"ou don't live in a cave when you wear a mask".

These kinds of phrases and trends erase those of us disabled who are forced to stay home, either because we are too disabled to go out, because we know we can't afford infections, or in general because of the inaccessibility of not wearing masks in public spaces.

In all communities and all movements, there are revolutionary and reactionary lines. There are people who call themselves COVID-conscious but have lack an anti-capitalist analysis of eugenics. And coincidentally, they are often the same people who don't focus on disability justice (they often simply name it but don't practice it). It could also be that a person simply made a mistake and fell into liberalism. Just as we know we're not immune to COVID, we're not immune to propaganda in general.

I have Crohn's disease, and since the beginning of the pandemic, I could do many things in my life. In 2023, I started to consider setting limits because I was seeing that so many people were not wearing masks anymore and I was trying to find the words to really figure out what I wanted to do. In May 2024, I had a symptomatic COVID infection that caused me to develop dysautonomia and that really disables me (even more).

Blog Camarada Demian · "Just because I wear a mask doesn't mean I'm locked in my house" is an ableist argumentBy demian

Creatine and Post-Viral Fatigue Syndrome: Can a Gym Supplement Support Brain Recovery?

propstmetabolichealth.substack

Comment: I've been taking 12 g/day of Creatine for many months now (with a break every 6 weeks).
This may be contributing to me feeling better.

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

1/

🎥 #Documentary #ChronicallyIgnored

Only a few days left until June 20th. I would be very grateful for sharing, so that as many people as possible can be reached! Thank you so much for your support!

A Wake-Up Call To Politics, Medicine & Research

#POTS #SmallFiber #SIBO #Autoimmunity #MCAS #FQAD #FQToxicity #FlagylToxicity #EDS #hEDS #Marfan #CCI #LongCovid #LongLyme #VacInjury #LongList #LongTragedy

Film Link here:
🎥vimeo.com/ondemand/chronically

Understanding PEM - Post Exertional

Ok, so after that (unintentional) cliffhanger, let's talk about energy production infrastructure and post-exertional malaise (PEM) in people with infection- and exposure-associated chronic illnesses (IACIs) such as #LongCOVID, #MECFS, chronic #Lyme and more.

threadreaderapp.com/thread/193 🔗

threadreaderapp.comThread by @PutrinoLab on Thread Reader App@PutrinoLab: Ok, so after that (unintentional) cliffhanger, let's talk about energy production infrastructure and post-exertional malaise (PEM) in people with infection- and exposure-associated chronic illnesses (IA...…

In case you missed it:

"The Bethesda Declaration: A Call for NIH and HHS Leadership to Deliver on Promises of Academic Freedom and Scientific Excellence"

standupforscience.net/bethesda

"Based on political preferences and without input from NIH scientific staff or Congress, NIH is censoring critical research and programs …" 💯

So many public health issues are affected.

You can co-sign this letter - see link!

STAND UP FOR SCIENCEBethesda Declaration — STAND UP FOR SCIENCESupport NIH Staff Now!