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#eds

3 posts3 participants0 posts today
Public *
Juchti

Ich möchte euch noch auf die Arte-Doku "Chronisch krank, chronisch ignoriert" hinweisen, die die Schwere der multisystemischen Erkrankungen #MEcfs und #LongCovid thematisiert, aber auch die Zusammenhänge zu den Erkrankungen #MCAS, #CCI, #EDS, #FQAD, #POTS etc.

Die Doku ist auf YouTube und in der Arte-Mediathek und zeigt eindrücklich das Leid der Betroffenen.

Wann passiert endlich etwas?
youtu.be/YnnDSHPaAsY?si=aSaNk1

youtu.be- YouTubeEnjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Public
Broadwaybabyto

When you’re healthy you believe you’ll always be healthy. That if you get sick it’ll be a temporary slow down & you will be back to normal after a few days.

When you learn that isn’t true, when you come face to face with the reality of how quickly you can lose your health, you become cautious.

This caution is part of protecting your baseline, and it’s a necessary survival skill when chronically ill.

disabledginger.com/p/maintaini

The Disabled Ginger · Maintaining a Baseline Means Everything When You're Chronically IllBy Broadwaybabyto
#chronicillness#spoonie#longcovid
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Cassian [main]

EDS is weird.

Sometimes I have to use a wheelchair because of fatigue and to prevent tired hips from just popping out.

If my hip goes it's better to use crutches because wheelchairing with a subluxed hip is harder than supported walking.

But today, because my shoulder recently popped out, I can't use a wheelchair or crutches because I need to rest my shoulder.

So I look less disabled BECAUSE I can't use one of my arms. :D I have to wear my special sunflower lanyard to signal my disability because I don't have mobility aids with me.

Green lanyard with sunflower pattern, on train table.
#disability#EDS
Public
Mark Martino

“Conclusions: The predisposition to anxiety in people with variant connective tissue reflects dynamic interactions between neural centres processing threat (amygdala) and representing bodily state (insular and parietal cortices). Correspondingly, interventions to regulate amygdala reactivity while enhancing interoceptive precision may have therapeutic benefit for symptomatic hypermobile individuals.” #EDS #CTD cambridge.org/core/journals/th

Cambridge CoreNeural processes linking joint hypermobility and anxiety: key roles for the amygdala and insular cortex | The British Journal of Psychiatry | Cambridge CoreNeural processes linking joint hypermobility and anxiety: key roles for the amygdala and insular cortex
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