A bit niche, but I'm looking for people in the #RettSyndrome #SETD5Syndrome #Autism #LearningDisability #Epilepsy community. Our daughter has all of the above. Would love to meet fellow #ParentCarer #UnpaidCarer folks
@BeckyWhinnerah hi, I have an #epilepsy #ASD2 kid. Unpaid carer.
@BeckyWhinnerah and good afternoon! Nice to meet you.
@BeckyWhinnerah not quite in your niche, but I’m a parent of a young adult with a #DEE.
@frogsquisher Hiya! What is #DEE ?
@BeckyWhinnerah DEE are developmental and epileptic encephalopathies. It’s a growing group of early onset epilepsies often with difficult to control seizures and developmental delay or stalling.