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Becky Whinnerah

A bit niche, but I'm looking for people in the community. Our daughter has all of the above. Would love to meet fellow folks

@BeckyWhinnerah not quite in your niche, but I’m a parent of a young adult with a #DEE.

@BeckyWhinnerah DEE are developmental and epileptic encephalopathies. It’s a growing group of early onset epilepsies often with difficult to control seizures and developmental delay or stalling.