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#unpaidcarer

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Katy Elphinstone<p>Dear People who hold the most power in a household. </p><p>You can't expect the other people in your household to simultaneously:</p><p>a) give precedence to your needs and feelings about things all the time,</p><p> b) be happier when you're around than when you're not there.</p><p>Those two things just don't go together. 🤷‍♀️</p><p><a href="https://mas.to/tags/Household" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Household</span></a> <a href="https://mas.to/tags/DomesticWork" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DomesticWork</span></a> <a href="https://mas.to/tags/Parenting" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Parenting</span></a> <a href="https://mas.to/tags/Bullying" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Bullying</span></a> <a href="https://mas.to/tags/EmotionalLabor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EmotionalLabor</span></a> <a href="https://mas.to/tags/WomensRights" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WomensRights</span></a> <a href="https://mas.to/tags/ChildrensRights" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChildrensRights</span></a> <a href="https://mas.to/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a> <a href="https://mas.to/tags/NuclearFamily" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NuclearFamily</span></a></p>
oftencalledcathyDisability stuff that might put you off your breakfast
oftencalledcathy<p>2,500 steps before breakfast cos it was shower day for B today</p><p>No wonder I’m struggling to recover from my <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> crash on February 6th</p><p><a href="https://mastodon.ie/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a></p>
oftencalledcathy<p>Exhausted </p><p><a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://mastodon.ie/tags/BankHoliday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>BankHoliday</span></a> <a href="https://mastodon.ie/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a></p>
oftencalledcathy<p>Well that was a very busy 3 hours getting DD2 up and out (even with the help of the home care worker)</p><p>Delighted to finally sit down in the garden with my breakfast ☀️🏡</p><p><a href="https://mastodon.ie/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Disability</span></a> <a href="https://mastodon.ie/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a> <a href="https://mastodon.ie/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a></p>
oftencalledcathy<p>Befor the fun starts today, I have to teach my daughter’s new carer how to shower her. Unfortunately I don’t speak her language and she doesn’t speak a lot of mine, so it’s going to be stressful! <a href="https://mastodon.ie/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a> <a href="https://mastodon.ie/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a></p>
Dr Suzanne Culshaw<p>For the past week or so, I’ve been blogging about being an <a href="https://toot.community/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a> including writing a whole load of <a href="https://toot.community/tags/haikus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>haikus</span></a>. </p><p>If this is your kind of thing, then do take a look but please be gentle with me 😉</p><p><a href="https://suzanneculshaw.wixsite.com/thebuddhistcarer" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">suzanneculshaw.wixsite.com/the</span><span class="invisible">buddhistcarer</span></a></p>
BexGoneWest<p>It's been such a long few days</p><p><a href="https://mastodon.art/tags/epilepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>epilepsy</span></a> <a href="https://mastodon.art/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://mastodon.art/tags/ParentCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ParentCarer</span></a> <a href="https://mastodon.art/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a></p>
BexGoneWest<p>It's been quite a week</p><p><a href="https://mastodon.art/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a> <a href="https://mastodon.art/tags/SEND" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEND</span></a> <a href="https://mastodon.art/tags/epilepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>epilepsy</span></a> <a href="https://mastodon.art/tags/SleepDeprived" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SleepDeprived</span></a> <a href="https://mastodon.art/tags/ArtistsOfMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ArtistsOfMastodon</span></a></p>
SJ says Bo Lux<p>I’m a retired early 63 old. I’ve got MS. Sure I’d work if someone would bloody help me and my husband with the care of my 86 year old demented dad. But we can’t work and care for him without help cos it’s too fecking exhausting.<a href="https://mastodonapp.uk/tags/work" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>work</span></a> <a href="https://mastodonapp.uk/tags/DementiaCare" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DementiaCare</span></a> <a href="https://mastodonapp.uk/tags/EarlyRetired" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EarlyRetired</span></a> <a href="https://mastodonapp.uk/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a></p>
Saba Salman<p>This recent piece from my colleague Mary O'Hara is horribly relevant today, given the latest from the UK govt on 'levelling up' - and Sunak's jet flights.</p><p>'Framing this calamity as a cost-of-living crisis suggests an evenly distributed, unavoidable experience. As with austerity, this is a fallacy.'</p><p><a href="https://newsie.social/tags/austerity" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>austerity</span></a> <a href="https://newsie.social/tags/costofliving" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>costofliving</span></a> <a href="https://newsie.social/tags/levellingup" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>levellingup</span></a> <a href="https://newsie.social/tags/ukpolitics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ukpolitics</span></a> <a href="https://newsie.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://newsie.social/tags/learningdisability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>learningdisability</span></a> <a href="https://newsie.social/tags/intellectualdisability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>intellectualdisability</span></a> <a href="https://newsie.social/tags/unpaidcarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>unpaidcarer</span></a> <a href="https://newsie.social/tags/care" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>care</span></a> <a href="https://newsie.social/tags/support" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>support</span></a> <a href="https://newsie.social/tags/socialcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>socialcare</span></a> </p><p><a href="https://www.cl-initiatives.co.uk/cuts-are-a-choice-not-a-necessity/" rel="nofollow noopener" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cl-initiatives.co.uk/cuts-are-</span><span class="invisible">a-choice-not-a-necessity/</span></a></p>
Saba Salman<p>Today's UK census data gives us even more evidence about the scale of the unmet support need among unpaid carers and/or people who have a disability and families...and the govt will treat (overlook) just the same way as it has treated all the existing evidence.</p><p>Also, I'm no statistician, but comparing data from the last census (2011) needs care, given the explanations about question wording and Covid.</p><p><a href="https://newsie.social/tags/census" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>census</span></a> <a href="https://newsie.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://newsie.social/tags/unpaidcarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>unpaidcarer</span></a> <a href="https://newsie.social/tags/covid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>covid</span></a> </p><p><a href="https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/healthandwellbeing/methodologies/healthdisabilityandunpaidcarequalityinformationforcensus2021" rel="nofollow noopener" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">ons.gov.uk/peoplepopulationand</span><span class="invisible">community/healthandsocialcare/healthandwellbeing/methodologies/healthdisabilityandunpaidcarequalityinformationforcensus2021</span></a></p>
oftencalledcathy<p>Best Christmas present of 2022? EIGHT hours sleep, with only one interruption 😊 </p><p>It’s several years since the last time I got to celebrate this milestone 😊</p><p><a href="https://mastodon.ie/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a> <a href="https://mastodon.ie/tags/AlwaysTired" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AlwaysTired</span></a></p>
Saba Salman<p>Looking forward to seeing my sister Raana over Christmas. But while festivities can be fun, they can also be complex. Holidays are tricky for many people, families and carers, even before adding Covid or the cost of living crisis into the mix. </p><p>This from the charity Sibs is vital (full disclosure: I'm a trustee and chair the charity):</p><p><a href="https://newsie.social/tags/siblings" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>siblings</span></a> <a href="https://newsie.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://newsie.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://newsie.social/tags/carer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>carer</span></a> <a href="https://newsie.social/tags/unpaidcarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>unpaidcarer</span></a> </p><p><a href="https://www.sibs.org.uk/support-for-adult-siblings/coping-with-festivities/" rel="nofollow noopener" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">sibs.org.uk/support-for-adult-</span><span class="invisible">siblings/coping-with-festivities/</span></a></p>
Saba Salman<p>Just because I love this smiley photo of Elliott and it doesn't display on the link in my last toot, here's a screen grab from the Tortoise website. </p><p><a href="https://newsie.social/tags/autistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autistic</span></a> <a href="https://newsie.social/tags/nonverbal" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>nonverbal</span></a> <a href="https://newsie.social/tags/complexneeds" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>complexneeds</span></a> <a href="https://newsie.social/tags/epilepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>epilepsy</span></a> <a href="https://newsie.social/tags/carer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>carer</span></a> <a href="https://newsie.social/tags/unpaidcarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>unpaidcarer</span></a> <a href="https://newsie.social/tags/pmld" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pmld</span></a> <a href="https://newsie.social/tags/journalism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>journalism</span></a> <a href="https://newsie.social/tags/podcast" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>podcast</span></a> <a href="https://newsie.social/tags/reporter" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>reporter</span></a> <a href="https://newsie.social/tags/editor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>editor</span></a></p>
Emma Dalrymple<p>Now I’ve been around for a month, I think I should expand on my <a href="https://mindly.social/tags/introduction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>introduction</span></a> a bit.<br>Seems I toot a lot about <a href="https://mindly.social/tags/smallholding" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>smallholding</span></a> and very little about <a href="https://mindly.social/tags/LivedExperience" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LivedExperience</span></a> (specifically <a href="https://mindly.social/tags/PPIE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PPIE</span></a> and <a href="https://mindly.social/tags/CoCreation" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CoCreation</span></a> in research). On reflection, it’s because I am still a bit burned by bird place, but I’m very much interested in hanging out in those spaces.<br>My <a href="https://mindly.social/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a> life is complicated but essential and it’s part of who I am, not something I ‘do’. Social media lets me socialise when real life doesn’t!</p>
Saba Salman<p>Still getting to grips with all this so I don't think the image showed in my previous post - but it's a beautiful one of Elliott so here it is again.</p><p>Here's the link again too: <a href="https://www.tortoisemedia.com/file/a-place-for-elliott/" rel="nofollow noopener" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">tortoisemedia.com/file/a-place</span><span class="invisible">-for-elliott/</span></a></p><p><a href="https://newsie.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://newsie.social/tags/learingdisability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>learingdisability</span></a> <a href="https://newsie.social/tags/podcast" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>podcast</span></a> <a href="https://newsie.social/tags/pmld" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pmld</span></a> <a href="https://newsie.social/tags/unpaidcarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>unpaidcarer</span></a> <a href="https://newsie.social/tags/send" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>send</span></a> <a href="https://newsie.social/tags/specialneeds" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>specialneeds</span></a> <a href="https://newsie.social/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>neurodiversity</span></a></p>
Saba Salman<p>This is a year old today - I'm sharing because how often do you see or hear from non-verbal people with complex or profound disabilities, or their families?</p><p>It's a story on how hard it is for some people to get Covid vaccinations, but it's also about one family's determination and joy.</p><p>A podcast with Elliott Goldsworthy and his family, for Tortoise Media, with ed David Taylor and producer Gemma Newby.<br> <br><a href="https://www.tortoisemedia.com/audio/a-place-for-elliott/" rel="nofollow noopener" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">tortoisemedia.com/audio/a-plac</span><span class="invisible">e-for-elliott/</span></a></p><p><a href="https://newsie.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://newsie.social/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Disability</span></a> <a href="https://newsie.social/tags/learningdisability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>learningdisability</span></a> <a href="https://newsie.social/tags/unpaidcarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>unpaidcarer</span></a> <a href="https://newsie.social/tags/epilepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>epilepsy</span></a></p>
Jenny Reeves<p>The fun life of an <a href="https://mastodonapp.uk/tags/UnpaidCarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnpaidCarer</span></a> last night Hub had a really bad night.<br>Pain caused him to be restless, have nightmares and in one dramatic moment fall out of bed breaking the dresser.<br>I had to get him back in bed ( I have both rotator cuffs torn) which meant lifting him while his pills kept him sedated.</p><p>I have not slept. It just took me over 30mins to take a shower because my arms hurt so much washing my hair is agony.<br>This is the reality that is worth £69 a week to the Tory Government.</p>
Saba Salman<p><span class="h-card"><a href="https://mastodon.scot/@FionaFisher" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>FionaFisher</span></a></span> <a href="https://newsie.social/tags/unpaidcarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>unpaidcarer</span></a> <a href="https://newsie.social/tags/parentcarer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>parentcarer</span></a> <a href="https://newsie.social/tags/CarersRightsDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CarersRightsDay</span></a> [every day] <a href="https://newsie.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://newsie.social/tags/disabilityrights" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disabilityrights</span></a></p>