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**lee - no pronouns** @leetxdd@lgbtqia.space · 19h *

lee - no pronouns @leetxdd@lgbtqia.space

Today is the 1st of May, which means it's the start of Ehlers Danlos Syndrome and Hypermobile Spectrum Disorder Awareness Month!

Hello and solidarity to all of my zebra siblings

A white trans mask wearing a green top lying in bed. He has a shaved head and the sun is on his face

#hypermobilesyndrome #Hypermobilespectrum #hypermobilespectrumdisorder

**thezerobit** @thezerobit@anticapitalist.party · Apr 22

Apr 22

thezerobit @thezerobit@anticapitalist.party

Today I learned that people with my condition are highly resistant to local anesthesia (LA), especially lidocaine which is only effective 8% of the time (!!) for people like me. Now I'm questioning every dental procedure I've white knuckled (literally). I've always just thought that local anesthesia just kind of sucks and that the nerves in your teeth are always going to cause shooting pain during certain procedures. Goddammit.

https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/

PubMed Central (PMC)Resistance to local anesthesia in people with the Ehlers-Danlos Syndromes presenting for dental surgeryPeople with the Ehlers-Danlos Syndromes (EDS), a group of heritable disorders of connective tissue, often report experiencing dental procedure pain despite local anesthetic (LA) use. Clinicians have been uncertain how to interpret this apparent LA ...

#anesthesia #vEDS #pain

**Ryan Rodarmer, MS** @3rscardiogc@genomic.social · Dec 30, 2022

Dec 30, 2022

Ryan Rodarmer, MS @3rscardiogc@genomic.social

Please check out myaorticjourney.org - my story plus a growing list of resources for aortic disease education, awareness, management, research, and support. #aortaed #aorticdissection #tad #htad #marfan #loeysdietz #veds #bav #cardiogen #cardiology