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#SickleCell

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babakofi<p>Man becomes first in <a href="https://union.place/tags/NewYork" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NewYork</span></a> to be cured of <a href="https://union.place/tags/sicklecell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecell</span></a> <a href="https://union.place/tags/anemia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>anemia</span></a><br><a href="https://union.place/tags/African" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>African</span></a> <a href="https://union.place/tags/Mediterranean" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Mediterranean</span></a> <a href="https://union.place/tags/MiddleEastern" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MiddleEastern</span></a> <a href="https://union.place/tags/Beauzille" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Beauzille</span></a> <a href="https://union.place/tags/med" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>med</span></a> <a href="https://union.place/tags/medical" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>medical</span></a><br><a href="https://www.wabi.tv/2025/03/14/man-becomes-first-new-york-be-cured-sickle-cell/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">wabi.tv/2025/03/14/man-becomes</span><span class="invisible">-first-new-york-be-cured-sickle-cell/</span></a></p>
Servelan<p>Long Island man is first in New York history to be cured of <a href="https://newsie.social/tags/sicklecell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecell</span></a> anemia - CBS New York</p><p><a href="https://www.cbsnews.com/newyork/news/sickle-cell-anemia-cure-new-york/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cbsnews.com/newyork/news/sickl</span><span class="invisible">e-cell-anemia-cure-new-york/</span></a></p>
The AEGIS Alliance<p>New York patient receives breakthrough cure for sickle cell disease, 'I’m not in pain anymore’</p><p><a href="https://mastodon.social/tags/genetherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>genetherapy</span></a> <a href="https://mastodon.social/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://mastodon.social/tags/healthnews" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>healthnews</span></a> <a href="https://mastodon.social/tags/healthcare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>healthcare</span></a> <a href="https://mastodon.social/tags/LongIsland" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongIsland</span></a> <a href="https://mastodon.social/tags/Medical" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Medical</span></a> <a href="https://mastodon.social/tags/Medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Medicine</span></a> <a href="https://mastodon.social/tags/NewYork" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NewYork</span></a> <a href="https://mastodon.social/tags/news" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>news</span></a> <a href="https://mastodon.social/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a><br><a href="https://theaegisalliance.com/2025/03/14/new-york-patient-receives-breakthrough-cure-for-sickle-cell-disease/?fsp_sid=1170" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">theaegisalliance.com/2025/03/1</span><span class="invisible">4/new-york-patient-receives-breakthrough-cure-for-sickle-cell-disease/?fsp_sid=1170</span></a></p>
Mark Taylor<p><a class="hashtag" href="https://bsky.app/search?q=%23Medicine" rel="nofollow noopener noreferrer" target="_blank">#Medicine</a> <a class="hashtag" href="https://bsky.app/search?q=%23SickleCell" rel="nofollow noopener noreferrer" target="_blank">#SickleCell</a><br><br>RE: <a href="https://bsky.app/profile/did:plc:7p6pezxyq3fr3fza4e4gdpst/post/3lketwdhqrc2l" rel="nofollow noopener noreferrer" target="_blank">https://bsky.app/profile/did:plc:7p6pezxyq3fr3fza4e4gdpst/post/3lketwdhqrc2l</a></p>
dan<p>Two Detroiters. One shared journey, two different paths. </p><p>D’Juan and Larenz share a bond through sickle cell disease, but their paths couldn’t be more different. </p><p>Larenz is symptom-free after a stem cell transplant. D’Juan continues to navigate life with the disease. </p><p>Their conversation sheds light on the challenges, inequities and hope surrounding sickle cell treatments in Detroit. </p><p><a href="https://outliermedia.org/sickle-cell-interview-transplants-care/?utm_source=fediverse_mastodon&amp;utm_medium=social" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">outliermedia.org/sickle-cell-i</span><span class="invisible">nterview-transplants-care/?utm_source=fediverse_mastodon&amp;utm_medium=social</span></a> </p><p><a href="https://a2mi.social/tags/detroit" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>detroit</span></a> <a href="https://a2mi.social/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://a2mi.social/tags/HealthCare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HealthCare</span></a> <a href="https://a2mi.social/tags/MentalHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MentalHealth</span></a> <a href="https://a2mi.social/tags/michigan" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>michigan</span></a> <a href="https://a2mi.social/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a></p>
Her Doing Health<p>🚨 Hope for those with <a href="https://med-mastodon.com/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a> disease! 🎉 </p><p>A potential functional cure for people in <a href="https://med-mastodon.com/tags/England" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>England</span></a> living with <a href="https://med-mastodon.com/tags/SCD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SCD</span></a> has been approved for use in the <a href="https://med-mastodon.com/tags/NHS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NHS</span></a>.</p><p>It is a form of one-time <a href="https://med-mastodon.com/tags/GeneTherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GeneTherapy</span></a>, &amp; researchers are having a success rate of 96.6% in patients who received the treatment.</p><p>It is <a href="https://med-mastodon.com/tags/hope" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hope</span></a> for those (about 4000 people in the <a href="https://med-mastodon.com/tags/UK" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>UK</span></a>) who are eligible for a stem cell transplant, but have no match. 🙏 </p><p><a href="https://www.theguardian.com/https://www.theguardian.com/society/2025/jan/31/groundbreaking-potential-cure-for-sickle-cell-in-england-approved-for-nhs-use" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/https://www.th</span><span class="invisible">eguardian.com/society/2025/jan/31/groundbreaking-potential-cure-for-sickle-cell-in-england-approved-for-nhs-use</span></a></p><p><a href="https://med-mastodon.com/tags/Crispr" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Crispr</span></a> <a href="https://med-mastodon.com/tags/Genetics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Genetics</span></a> <a href="https://med-mastodon.com/tags/MedicalResearch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MedicalResearch</span></a> <a href="https://med-mastodon.com/tags/Health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Health</span></a> <a href="https://med-mastodon.com/tags/Science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Science</span></a></p>
Jon Hancock<p>"…there was a “functional cure” in 96.6% of participants who received the treatment."</p><p><a href="https://www.theguardian.com/society/2025/jan/31/groundbreaking-potential-cure-for-sickle-cell-in-england-approved-for-nhs-use" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/society/2025/j</span><span class="invisible">an/31/groundbreaking-potential-cure-for-sickle-cell-in-england-approved-for-nhs-use</span></a></p><p><a href="https://social.vivaldi.net/tags/Health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Health</span></a> <a href="https://social.vivaldi.net/tags/NHS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NHS</span></a> <a href="https://social.vivaldi.net/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a></p>
Daniel Hoffmann 🥬<p>We can cure a genetic disease, not only in mice but in people! New <a href="https://mathstodon.xyz/tags/crispr" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>crispr</span></a> based <a href="https://mathstodon.xyz/tags/sicklecell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecell</span></a> therapy fixes stem cells of patients. Now let's make it cheaper. <a href="https://www.theguardian.com/society/2025/jan/31/groundbreaking-potential-cure-for-sickle-cell-in-england-approved-for-nhs-use" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/society/2025/j</span><span class="invisible">an/31/groundbreaking-potential-cure-for-sickle-cell-in-england-approved-for-nhs-use</span></a></p>
Shine My Crown<p>Dame Elizabeth Anionwu: Renowned Health Care Administrator Honored for Pioneering Sickle Cell Work <a href="https://shinemycrown.com/dame-elizabeth-anionwu-renowned-health-care-administrator-honored-for-pioneering-sickle-cell-work/?utm_source=dlvr.it&amp;utm_medium=mastodon" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">shinemycrown.com/dame-elizabet</span><span class="invisible">h-anionwu-renowned-health-care-administrator-honored-for-pioneering-sickle-cell-work/?utm_source=dlvr.it&amp;utm_medium=mastodon</span></a> <a href="https://newsie.social/tags/Healthcare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Healthcare</span></a> <a href="https://newsie.social/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a> <a href="https://newsie.social/tags/Nursing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Nursing</span></a> <a href="https://newsie.social/tags/HealthCareHero" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HealthCareHero</span></a> <a href="https://newsie.social/tags/PioneeringWomen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PioneeringWomen</span></a></p>
Anne Fausto Sterling<p>"she still struggles with chronic pain in her back and legs caused by decades of tissue and nerve damage from sickle-cell disease."<br><a href="https://mastodon.world/tags/sicklecell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecell</span></a> <br><a href="https://mastodon.world/tags/medsky" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>medsky</span></a> <a href="https://mastodon.world/tags/blacksky" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>blacksky</span></a> <a href="https://mastodon.world/tags/science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>science</span></a> <a href="https://mastodon.world/tags/complex" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>complex</span></a></p><p><a href="https://www.nature.com/articles/d41586-024-02994-2" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nature.com/articles/d41586-024</span><span class="invisible">-02994-2</span></a></p>
Guy on the run<p>Sickle Cell Disease - What Is Sickle Cell Disease? | NHLBI, NIH<br><a href="https://www.nhlbi.nih.gov/health/sickle-cell-disease" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nhlbi.nih.gov/health/sickle-ce</span><span class="invisible">ll-disease</span></a></p><p><a href="https://mastodon.social/tags/GetToKnowSickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GetToKnowSickleCell</span></a><br><a href="https://mastodon.social/tags/sicklecellanemia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecellanemia</span></a><br><a href="https://mastodon.social/tags/sicklecelldisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecelldisease</span></a><br><a href="https://mastodon.social/tags/sicklecell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecell</span></a><br><a href="https://mastodon.social/tags/SickleCellTrait" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCellTrait</span></a><br><a href="https://mastodon.social/tags/sicklecellpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecellpain</span></a><br><a href="https://mastodon.social/tags/SCD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SCD</span></a></p>
Servelan<p><a href="https://newsie.social/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a> community scrambles after a Pfizer drug is pulled from the market</p><p><a href="https://www.statnews.com/2024/09/27/sickle-cell-disease-oxbryta-patients-doctors/?utm_campaign=rss" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">statnews.com/2024/09/27/sickle</span><span class="invisible">-cell-disease-oxbryta-patients-doctors/?utm_campaign=rss</span></a></p>
Thiago Carvalho<p>'Last December, the Food and Drug Administration gave approvalto two companies, Bluebird Bio of Somerville, Mass., and Vertex Pharmaceuticals of Boston, to sell the first gene therapies approved for sickle cell disease. After nine months, Kendric remains the first Bluebird patient to progress this far, with at least a few others advancing toward his pace.'<br><a href="https://qoto.org/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a> <a href="https://qoto.org/tags/GeneTherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GeneTherapy</span></a><br><a href="https://www.nytimes.com/2024/09/16/health/sickle-cell-gene-therapy-kendric-cromer.html" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nytimes.com/2024/09/16/health/</span><span class="invisible">sickle-cell-gene-therapy-kendric-cromer.html</span></a></p>
Brittany Trang<p>A fantastic story from C&amp;EN about Indian gene therapies for <a href="https://newsie.social/tags/sicklecell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecell</span></a>. </p><p>In the US, we often think of sickle cell affecting African Americans, but there's a huge crisis in <a href="https://newsie.social/tags/India" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>India</span></a>, where it's estimated over 1 million(!) people have <a href="https://newsie.social/tags/SCD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SCD</span></a>.</p><p><a href="https://cen.acs.org/pharmaceuticals/gene-therapy/Sickle-cell-disease-India-quest/102/i24" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">cen.acs.org/pharmaceuticals/ge</span><span class="invisible">ne-therapy/Sickle-cell-disease-India-quest/102/i24</span></a></p>
Delphi<p><a href="https://mastodon.scot/tags/UK" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>UK</span></a> <a href="https://mastodon.scot/tags/treatment" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>treatment</span></a> for <a href="https://mastodon.scot/tags/covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covid</span></a> is <a href="https://mastodon.scot/tags/rationed" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rationed</span></a> though there's many <a href="https://mastodon.scot/tags/medical" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>medical</span></a> <a href="https://mastodon.scot/tags/conditions" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>conditions</span></a> that mean <a href="https://mastodon.scot/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> can be <a href="https://mastodon.scot/tags/dangerous" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dangerous</span></a> or <a href="https://mastodon.scot/tags/lifelimiting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>lifelimiting</span></a>.<br>It's common knowledge by now that the <a href="https://mastodon.scot/tags/risk" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>risk</span></a> of becoming very <a href="https://mastodon.scot/tags/ill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ill</span></a> with <a href="https://mastodon.scot/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> is <a href="https://mastodon.scot/tags/higher" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>higher</span></a> with <a href="https://mastodon.scot/tags/diabetes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>diabetes</span></a>, <a href="https://mastodon.scot/tags/obesity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>obesity</span></a>, <a href="https://mastodon.scot/tags/asthma" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>asthma</span></a>, <a href="https://mastodon.scot/tags/chronic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronic</span></a> <a href="https://mastodon.scot/tags/lungdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>lungdisease</span></a>, <a href="https://mastodon.scot/tags/sicklecell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecell</span></a> <a href="https://mastodon.scot/tags/disease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disease</span></a> or just being <a href="https://mastodon.scot/tags/over50" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>over50</span></a> but that's just tough luck if you live in the UK. Not only that, even those <a href="https://mastodon.scot/tags/eligible" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eligible</span></a> can't access treatment<br><a href="https://www.cdc.gov/covid/risk-factors/index.html" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cdc.gov/covid/risk-factors/ind</span><span class="invisible">ex.html</span></a></p><p><a href="https://www.theguardian.com/society/article/2024/jul/21/vulnerable-people-with-covid-struggling-to-access-treatments-in-england" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/society/articl</span><span class="invisible">e/2024/jul/21/vulnerable-people-with-covid-struggling-to-access-treatments-in-england</span></a><br><a href="https://mastodon.scot/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Brittany Trang<p>NEW: <a href="https://newsie.social/tags/Vertex" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Vertex</span></a> Pharmaceuticals is suing the gov over blocking access to <a href="https://newsie.social/tags/fertility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fertility</span></a> preservation services for people getting <a href="https://newsie.social/tags/Casgevy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Casgevy</span></a>, the first <a href="https://newsie.social/tags/CRISPR" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CRISPR</span></a> treatment, which treats <a href="https://newsie.social/tags/sicklecell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sicklecell</span></a> &amp; <a href="https://newsie.social/tags/betathalassemia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>betathalassemia</span></a> </p><p>Currently, Vertex offering to help patients access these services illegal under anti-kickback laws</p><p>via <span class="h-card" translate="no"><a href="https://newsie.social/@STAT" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>STAT</span></a></span> <br><a href="https://www.statnews.com/2024/07/15/vertex-casgevy-sickle-cell-infertility-hhs-lawsuit-fertility-preservation/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">statnews.com/2024/07/15/vertex</span><span class="invisible">-casgevy-sickle-cell-infertility-hhs-lawsuit-fertility-preservation/</span></a></p><p><a href="https://newsie.social/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://newsie.social/tags/healthcare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>healthcare</span></a> <a href="https://newsie.social/tags/genetherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>genetherapy</span></a> <a href="https://newsie.social/tags/medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>medicine</span></a></p>
Knowledge Zone<p><a href="https://mstdn.social/tags/OnThisDay" class="mention hashtag" rel="tag">#<span>OnThisDay</span></a> Birth Anniversary of Blaise Pascal (1623) - French mathematician, physicist, inventor. He made important contributions to the study of fluids, and clarified the concepts of pressure and vacuum.</p><p>Today is World <a href="https://mstdn.social/tags/SickleCell" class="mention hashtag" rel="tag">#<span>SickleCell</span></a> Day.</p><p><a href="https://knowledgezone.co.in/news" target="_blank" rel="nofollow noopener noreferrer" translate="no"><span class="invisible">https://</span><span class="">knowledgezone.co.in/news</span><span class="invisible"></span></a></p>
mem_somerville<p><span class="h-card" translate="no"><a href="https://sciencemastodon.com/@jperkel" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>jperkel</span></a></span> <span class="h-card" translate="no"><a href="https://mstdn.social/@Nature" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>Nature</span></a></span> <span class="h-card" translate="no"><a href="https://sciencemastodon.com/@heidiledford" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>heidiledford</span></a></span> I did not know about this: "Most of the people with sickle-cell disease in India — a country with one of the highest rates of the condition — live in impoverished communities. "</p><p><a href="https://mastodon.social/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a></p>
Flipboard Science Desk<p><span class="h-card" translate="no"><a href="https://newsie.social/@STAT" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>STAT</span></a></span> is investigating the denial of reproductive autonomy for people with sickle cell disease.</p><p>Their latest article explores "how doctors are pressuring sickle cell patients into unwanted sterilizations."</p><p><a href="https://flip.it/1k2pnu" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">flip.it/1k2pnu</span><span class="invisible"></span></a></p><p><a href="https://flipboard.social/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a> <a href="https://flipboard.social/tags/Disease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disease</span></a> <a href="https://flipboard.social/tags/ReproductiveRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ReproductiveRights</span></a> <a href="https://flipboard.social/tags/Health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Health</span></a> <a href="https://flipboard.social/tags/Medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Medicine</span></a> <a href="https://flipboard.social/tags/Discrimination" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Discrimination</span></a> <a href="https://flipboard.social/tags/BlackMastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BlackMastodon</span></a></p>
Jason Yip<p>First Patient Begins Newly Approved <a href="https://mastodon.online/tags/SickleCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SickleCell</span></a> <a href="https://mastodon.online/tags/GeneTherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GeneTherapy</span></a> <a href="https://www.nytimes.com/2024/05/06/health/sickle-cell-cure-first.html" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nytimes.com/2024/05/06/health/</span><span class="invisible">sickle-cell-cure-first.html</span></a></p>
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