LPT: do not play the "are you hyper-mobile" game (bending joints into odd positions) with your hyper-mobile friend right before a long drive.
Turns out I am hyper-mobile in some joints and some ranges of motion I thought were normal aren't and doing too much can make your driving hands sad and sensitive to driving vibrations.
It was nice having a non-hyper-mobile friend there to make faces and confirm that certain motions weren't standard. Also I should talk to my physician about this. #hypermobility
A friendly reminder to anyone who has Ehlers-Danlos or has joint hypermobility (aka "double-jointed"):
*****
Avoid the antibiotic Cipro like the plague.
*****
It can destroy your body. It weakens tendons and ligaments and makes them susceptible to abruptly bursting or snapping. The effects of the drug can be long-term. My brother took it and had to have major surgery to have a tendon reattached in his thumb. His story isn't nearly as horrible as others I have heard.
#EhlersDanlos
#EDS
#cipro
#joints
#hypermobility
#DoubleJointed
#antibiotics
#MedicalHorror
EDS hypermobility is super frustrating. Yesterday I could walk, with very little issue. Today…I can barely walk without my knee cap being unstable. I guess you’ll find me on the sofa crocheting today.
Today I went for my first run in well over a year. I hope I will be able to keep it up. I used to do trail, mountain, and obstacle course races, but my health has made it very hard to pick that back up again. I have problematic feet. They are hypermobile with extremely flexible Achilles tendons. That means there is absolutely no bounce to my running, and every stride is strictly muscular. Tie that in with recurring Achilles tendonopathy, and it makes running almost impossible. But I'm gonna try to get my foot strength/endurance back. #running #hypermobility #AchillesTendonopathy #InvisibleDisability
Today is the 1st of May, which means it's the start of Ehlers Danlos Syndrome and Hypermobile Spectrum Disorder Awareness Month!
Hello and solidarity to all of my zebra siblings
@RavynWitch I hate when those days just show up out of nowhere. Hope you have good pain days in the very near future!
The whiplash of going from several good pain days and the imposter syndrome that comes with it…
To a day where everything hurts so bad I can barely walk. Ugh.
#NEISvoid #hypermobility #ChronicPain
This is a whole mood this week.
#ChronicPain #hypermobility #NEISvoid
Having a bit of an existential crisis today about my disability, because of how varied my day to day experience can be. Asking for this was hard. The fact that it didn’t surprise my doctor and he thought it was a good idea was somehow…harder?
#ChronicPain #NEISvoid #hypermobility
on hypermobility (long)
Hypermobile mourning dove?? I've seen a lot of bird yoga, but never seen a bird flip his wing to the wrong side of his body before. (He was fine, just repeated the stretch on the other side and finished his bath) #hypermobility #birb
So I come to the hivemind:
do any of you all have any recommendations or favorite things that you have used on your own person to help keep you from accidentally injuring yourself?
Not just hands/fingers/wrists. But also arms/elbows, shoulders, knees and ankles.
busybee: fluffy rambles: A timeline of my chronic pain https://beesbuzz.biz/blog/12984-A-timeline-of-my-chronic-pain #Hypermobility #Fibromyalgia #ChronicPain #Disability #Blog