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Shantell PowellI deviated from my usual eating patterns for my birthday party on Sunday and am still dealing with the repercussions today. I love birthday cake, strawberry daiquiris, and snacking all day, but my GI tract does not. It went on strike. I was so bloated last night that I looked third-trimester pregnant. I'm considerably smaller today after deplorable bathroom shenanigans taking place throughout the night courtesy of a teeny weeny pill, but I have no appetite. I have been sipping on tea and avoiding the gym. Hopefully I'll be recovered enough for <a href="https://mstdn.games/@Knightky" class="u-url mention" rel="nofollow noopener" target="_blank">@Knightky</a> 's work party tomorrow. Phew! <a href="https://c.im/tags/IBS" class="mention hashtag" rel="nofollow noopener" target="_blank">#IBS</a> <a href="https://c.im/tags/Diverticulosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diverticulosis</a> <a href="https://c.im/tags/Gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#Gastroparesis</a> <a href="https://c.im/tags/Dyspepsia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dyspepsia</a> <a href="https://c.im/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicIllness</a>

Lisa M-NGastroparesen skenar just nu. Har fortfarande fett att ta av men märker hur utmattad jag lätt blir. Hur hjärtat skenar. Hur jag är konstant illamående och kräks. Att det gör ont efter att ha ätit. Och det jobbigaste, att jag får små blackouts när jag försöker pressa kroppen. Tänk som flimrande lysrör.Jag är mer aktiv än på många år men det kräver en hel del för att kunna hålla tempot uppe. <a href="https://mastodon.nu/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a> <a href="https://mastodon.nu/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#disability</a> <a href="https://mastodon.nu/tags/funkisliv" class="mention hashtag" rel="nofollow noopener" target="_blank">#funkisliv</a>

Chris GeoghooliganI made the rookie mistake yesterday of saying out loud that my <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a> hasn’t been bad this last week and as a result my BG has been much better. Instant inexplicable 350mg/dL insulin-resistant response to the same dinner we eat every week with no issues. 🙄I want off this ride.<a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/DiabeticProblems" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiabeticProblems</a>

Chris GeoghooliganMy body has decided to digest my dinner promptly tonight, along with the OJ, wheat thins, and craisins I ate over the course of a 2.5 hour hypo (ending 4 hours ago) when it WASN’T digesting, and now I’m 310 and rising.My mental health will kill me if my T1D & gastroparesis don’t first.<a href="https://toot.community/tags/FML" class="mention hashtag" rel="nofollow noopener" target="_blank">#FML</a> <a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/DiabeticProblems" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiabeticProblems</a> <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a>

Chris GeoghooliganThis is the bullshit <a href="https://toot.community/tags/Tandem" class="mention hashtag" rel="nofollow noopener" target="_blank">#Tandem</a>’s <a href="https://toot.community/tags/ControlIQ" class="mention hashtag" rel="nofollow noopener" target="_blank">#ControlIQ</a> does to someone with unpredictable <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a>. FWIW I started eating when my BG was 93. <a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/DiabeticProblems" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiabeticProblems</a>

Chris GeoghooliganGFDammit. <a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/DiabeticProblems" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiabeticProblems</a> <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a>

Chris GeoghooliganFor those who don’t understand how <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a> affects my <a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a>, my insulin was suspended for over 1.5 hours before I finally caved and had a glass of OJ and a bowl of cereal with no bolus. It’s been 1:15 since then and I’m only at 116 mg/dL.Sometime this evening, unannounced, my BG will skyrocket when I start to digest. Meanwhile I’m fighting to not be hypo.

Chris GeoghooliganfffffffuuuuuuuucccccccCCCCCCKKKKKKKKK <a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/DiabeticProblems" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiabeticProblems</a> <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a>

Chris GeoghooliganI contacted my <a href="https://toot.community/tags/endocrinologist" class="mention hashtag" rel="nofollow noopener" target="_blank">#endocrinologist</a> about potentially using <a href="https://toot.community/tags/fiasp" class="mention hashtag" rel="nofollow noopener" target="_blank">#fiasp</a> in my <a href="https://toot.community/tags/Tandem" class="mention hashtag" rel="nofollow noopener" target="_blank">#Tandem</a> <a href="https://toot.community/tags/tslim" class="mention hashtag" rel="nofollow noopener" target="_blank">#tslim</a> <a href="https://toot.community/tags/insulinpump" class="mention hashtag" rel="nofollow noopener" target="_blank">#insulinpump</a> to help mitigate the issues I have balancing bolus response times & unpredictable <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a> occurrence & duration. She’s not outright opposed which is nice, but she mentioned a different pump that is supposed to approximate how a pancreas works: <a href="https://toot.community/tags/BetaBionics" class="mention hashtag" rel="nofollow noopener" target="_blank">#BetaBionics</a>. I hadn’t heard of it. Does anyone have experience with this pump?<a href="https://www.betabionics.com" rel="nofollow noopener" translate="no" target="_blank">https://www.betabionics.com</a><a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/pumptherapy" class="mention hashtag" rel="nofollow noopener" target="_blank">#pumptherapy</a>

Chris Geoghooligan<a href="https://toot.community/tags/Gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#Gastroparesis</a> can eat a big bag of dicks.<a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/DiabeticProblems" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiabeticProblems</a>

Chris GeoghooliganNot today, <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a>!<a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/DiabeticProblems" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiabeticProblems</a>

Chris GeoghooliganAttn: <a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> folks.Have you any experience with <a href="https://toot.community/tags/fiasp" class="mention hashtag" rel="nofollow noopener" target="_blank">#fiasp</a>, particularly as used in an <a href="https://toot.community/tags/insulin" class="mention hashtag" rel="nofollow noopener" target="_blank">#insulin</a> pump? How does it compare to <a href="https://toot.community/tags/humalog" class="mention hashtag" rel="nofollow noopener" target="_blank">#humalog</a> or <a href="https://toot.community/tags/novolog" class="mention hashtag" rel="nofollow noopener" target="_blank">#novolog</a>?I take <a href="https://toot.community/tags/novolog" class="mention hashtag" rel="nofollow noopener" target="_blank">#novolog</a> via my <a href="https://toot.community/tags/tandem" class="mention hashtag" rel="nofollow noopener" target="_blank">#tandem</a> <a href="https://toot.community/tags/tslim" class="mention hashtag" rel="nofollow noopener" target="_blank">#tslim</a>, but I’m finding it increasingly difficult to control my BG as my <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a> grows more erratic over time. I’m wondering if a faster-acting insulin might help, allowing me to NOT bolus until I see a BG rise when my stupid stomach decides to start digesting (sometimes immediately, sometimes 4 hours later).

Chris GeoghooliganMy current routine is not working & my BG has been awful. Large spike in the AM when I eat literally anything (cortisol yay!), sustained high until the evening then a multi-hour descent to hypo when my <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a> kicks in, followed by a rebound as I <a href="https://toot.community/tags/EatTheKitchen" class="mention hashtag" rel="nofollow noopener" target="_blank">#EatTheKitchen</a>.So I’m switching things up. Quick small breakfast, hop on the bike to fight spike, then cold brew as a treat. Hopefully addressing the early high will tamp down the later variance.<a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/DiabeticProblems" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiabeticProblems</a>

RhyothemisYoung woman with Ehlers-Danlos discusses her experience with gastroparesis -What made my GASTROPARESIS better?! <a href="https://youtu.be/ujtdwrGvne0?si=7dCWlo23xRCnNYdc" rel="nofollow noopener" translate="no" target="_blank">https://youtu.be/ujtdwrGvne0?si=7dCWlo23xRCnNYdc</a><a href="https://zeroes.ca/tags/Gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#Gastroparesis</a> <a href="https://zeroes.ca/tags/vomiting" class="mention hashtag" rel="nofollow noopener" target="_blank">#vomiting</a> <a href="https://zeroes.ca/tags/nausea" class="mention hashtag" rel="nofollow noopener" target="_blank">#nausea</a> <a href="https://zeroes.ca/tags/EhlersDanlos" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlos</a> <a href="https://zeroes.ca/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a>

Chris GeoghooliganFor anyone wondering what it’s like to be <a href="https://toot.community/tags/diabetic" class="mention hashtag" rel="nofollow noopener" target="_blank">#diabetic</a> w/ <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a>.I ate at 11:30, then started the exercise bike while watching my (awful) Hokies. My <a href="https://toot.community/tags/insulin" class="mention hashtag" rel="nofollow noopener" target="_blank">#insulin</a> kicked in & my BG dropped. I then laid on the couch for 3 GD hours shoveling sugar in my face w/ basal suspended while my body refused to digest anything. Now that my window for exercise is closed & I have other things to do, I’m finally digesting & my BG is going to skyrocket.<a href="https://toot.community/tags/FML" class="mention hashtag" rel="nofollow noopener" target="_blank">#FML</a> <a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> <a href="https://toot.community/tags/Type1Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Type1Diabetes</a> <a href="https://toot.community/tags/Diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#Diabetes</a> <a href="https://toot.community/tags/DiabeticProblems" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiabeticProblems</a>

OsteoarthriticAutisticGastroparesis Awareness Month. Gastroparesis is often associated with Ehlers-Danlos syndrome, EDS, and ME/CFS. <a href="https://www.thecanary.co/uk/news/2024/08/13/gastroparesis/?__s=9bm2sty5aen2kqh2i4ez" rel="nofollow noopener" translate="no" target="_blank">https://www.thecanary.co/uk/news/2024/08/13/gastroparesis/?__s=9bm2sty5aen2kqh2i4ez</a><a href="https://disabled.social/tags/Gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#Gastroparesis</a> <a href="https://disabled.social/tags/EhlersDanlosSyndromes" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndromes</a> <a href="https://disabled.social/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#ME</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a>

Lanie CarmeloLong post, medical issues and tech

Chris Geoghooligan<a href="https://mstdn.ca/@reallyflygreg" class="u-url mention" rel="nofollow noopener" target="_blank">@reallyflygreg</a> as a <a href="https://toot.community/tags/T1D" class="mention hashtag" rel="nofollow noopener" target="_blank">#T1D</a> with <a href="https://toot.community/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a>, I would *love* a faster acting <a href="https://toot.community/tags/insulin" class="mention hashtag" rel="nofollow noopener" target="_blank">#insulin</a>. It would help take the guesswork out of whether my body is going to digest or not and whether I should bolus and for how long. That would be legitimately life changing.

Lanie CarmeloMedical stuff

CyrusCurrently debating if I should spend $250 on trying acotiamide, a medication that is approved for postprandial distress syndrome in Japan and India. Not that it will help with blood pooling into my stomach due to <a href="https://toot.aquilenet.fr/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> or avoid post-exertional malaise from eating more than I can tolerate, but if it can make digestion somewhat less painful…😮‍💨<a href="https://toot.aquilenet.fr/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://toot.aquilenet.fr/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener" target="_blank">#NEISvoid</a> <a href="https://toot.aquilenet.fr/tags/gastroparesis" class="mention hashtag" rel="nofollow noopener" target="_blank">#gastroparesis</a>

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