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Digital Preservation Coalition<p>📣 Join us for the DPC Preservation Registries Special Interest Group session!</p><p>📅 When: Thursday, June 5th<br>🔓 Open to: All interested in format &amp; software registries<br>💡 Topic: Monthly discussion on preservation registries</p><p>Details &amp; joining information:<br><a href="https://www.dpconline.org/events/eventdetail/444/-/preservation-registries-special-interest-group" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">dpconline.org/events/eventdeta</span><span class="invisible">il/444/-/preservation-registries-special-interest-group</span></a></p><p><a href="https://digipres.club/tags/DigitalPreservation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DigitalPreservation</span></a> <a href="https://digipres.club/tags/Coalition" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Coalition</span></a> <a href="https://digipres.club/tags/digipres" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>digipres</span></a> <a href="https://digipres.club/tags/community" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>community</span></a> <a href="https://digipres.club/tags/DPC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DPC</span></a> <a href="https://digipres.club/tags/registries" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>registries</span></a> <a href="https://digipres.club/tags/JoinUs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>JoinUs</span></a> 😊</p>
Likely Jan Lukas<p><span class="h-card" translate="no"><a href="https://infosec.exchange/@hacks4pancakes" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>hacks4pancakes</span></a></span> </p><p>A good moment for me to make my (generally futile) reminder that a <a href="https://mstdn.ca/tags/MarriedName" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MarriedName</span></a> is an <a href="https://mstdn.ca/tags/AdoptedName" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AdoptedName</span></a> / <a href="https://mstdn.ca/tags/AssumedName" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AssumedName</span></a> that is recognised by tradition and convention, and is not the same as a <a href="https://mstdn.ca/tags/LegalName" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LegalName</span></a>.</p><p>If one obtains a <a href="https://mstdn.ca/tags/LegalChangeOfName" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LegalChangeOfName</span></a> there are additional filings (and sometimes fees, affadavits, etc) with the local <a href="https://mstdn.ca/tags/VitalStats" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>VitalStats</span></a> / <a href="https://mstdn.ca/tags/Registries" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Registries</span></a> office, which will also result in an amendment to the name on any <a href="https://mstdn.ca/tags/BirthCertificates" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BirthCertificates</span></a> issued thereafter.</p>
Michele Neylon<p><a href="https://flipboard.social/tags/registries" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>registries</span></a> Hello Registry Picks up Automattic’s DotBlog <a href="https://mj.ie/4fIf7Zt" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">mj.ie/4fIf7Zt</span><span class="invisible"></span></a></p>
The Spamhaus Project<p>🔥 🌐&nbsp; DOMAIN REPORT | 36 million new domains and 1.8 million domains listed. Plus a surprising twist - “apple” drops out of the Top 20 phishing terms! Meanwhile, TLD .top’s (#2) poor abuse handling performance prompts letter from ICANN.&nbsp;</p><p>Read the full report here ⬇️ <br><a href="https://www.spamhaus.org/resource-hub/domain-reputation/domain-reputation-update-apr-2024-sept-2024/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">spamhaus.org/resource-hub/doma</span><span class="invisible">in-reputation/domain-reputation-update-apr-2024-sept-2024/</span></a> </p><p> <a href="https://infosec.exchange/tags/ThreatIntel" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ThreatIntel</span></a> <a href="https://infosec.exchange/tags/gTLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gTLD</span></a> <a href="https://infosec.exchange/tags/ccTLD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ccTLD</span></a> <a href="https://infosec.exchange/tags/Domains" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Domains</span></a> <a href="https://infosec.exchange/tags/ThreatIntelligence" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ThreatIntelligence</span></a> <a href="https://infosec.exchange/tags/Registrars" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Registrars</span></a> <a href="https://infosec.exchange/tags/Registries" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Registries</span></a> <a href="https://infosec.exchange/tags/Phishing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Phishing</span></a> <a href="https://infosec.exchange/tags/Malware" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Malware</span></a> <a href="https://infosec.exchange/tags/Spam" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spam</span></a> <a href="https://infosec.exchange/tags/TrendingTerms" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TrendingTerms</span></a></p>
Chuck Darwin<p>A study of 26 <a href="https://c.im/tags/carbon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>carbon</span></a> <a href="https://c.im/tags/offset" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>offset</span></a> projects across six countries published in the journal Science last year found that <br>🔸few of them succeeded in stopping deforestation. </p><p>Whatever climate benefits the projects were purported to have were 🔸overblown by as much as 300 percent. </p><p>A separate investigationinto one of the world’s leading carbon <a href="https://c.im/tags/registries" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>registries</span></a> found that <br>🔸90 percent of its rainforest offsets turned out to be “phantom credits”&nbsp;that likely didn’t represent real-world reductions in greenhouse gas emissions. </p><p>And a 2022 report by nonprofit watchdog Carbon Market Watch determined that carbon offset credits offered by major European airlines were similarly🔸 linked to faulty forestry projects.</p><p><a href="https://www.theverge.com/2024/5/22/24162428/google-meta-microsoft-salesforce-symbiosis-coalition-nature-carbon-removal-forest-offsets" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theverge.com/2024/5/22/2416242</span><span class="invisible">8/google-meta-microsoft-salesforce-symbiosis-coalition-nature-carbon-removal-forest-offsets</span></a></p>
Jan R. Boehnke<p>I am very interested in research w routinely collected and otherwise available data and look forward to <a href="https://mastodon.social/tags/IQOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IQOQOL</span></a>'s Measuring What Matters Symposium on the role of patient-reported outcome measures in Australia's clinical <a href="https://mastodon.social/tags/registries" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>registries</span></a> in oncology:<br><a href="https://www.isoqol.org/register-today-for-the-2023-measuring-what-matters-symposium/" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">isoqol.org/register-today-for-</span><span class="invisible">the-2023-measuring-what-matters-symposium/</span></a></p><p>Overview of clinical registries in Oncology and Patient-reported outcomes data</p><p>International examples of PROMs in oncology clinical registries </p><p>The role of clinical registries in integrating PROMs into clinical care</p><p><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HRQL</span></a></p>
Marathon<p>A <a href="https://mstdn.social/tags/BackgroundCheck" class="mention hashtag" rel="tag">#<span>BackgroundCheck</span></a> should always include a search of available <a href="https://mstdn.social/tags/SexOffender" class="mention hashtag" rel="tag">#<span>SexOffender</span></a> <a href="https://mstdn.social/tags/Registries" class="mention hashtag" rel="tag">#<span>Registries</span></a>, in every location the Subject has lived or worked.</p><p>Parents, do you know who works with your minors? </p><p><a href="https://mstdn.social/tags/StatutoryRape" class="mention hashtag" rel="tag">#<span>StatutoryRape</span></a></p><p><a href="https://www.wsbtv.com/news/local/gwinnett-county/registered-sex-offender-ga-mcdonalds-manager-accused-getting-15-year-old-employee-pregnant/G7TWURTIVNFSBHBF2QGGBSBGKE/" target="_blank" rel="nofollow noopener noreferrer" translate="no"><span class="invisible">https://www.</span><span class="ellipsis">wsbtv.com/news/local/gwinnett-</span><span class="invisible">county/registered-sex-offender-ga-mcdonalds-manager-accused-getting-15-year-old-employee-pregnant/G7TWURTIVNFSBHBF2QGGBSBGKE/</span></a></p>
Diana<p>Our task force correspondence, which lists several barriers encountered when quantifying the impact of rare diseases in patients and caregivers (and some potential solutions), has just been published. However, more can and should be done in this direction @BurdenEU</p><p><a href="https://econtwitter.net/tags/rarediseases" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rarediseases</span></a> <a href="https://econtwitter.net/tags/epidemiology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>epidemiology</span></a> <a href="https://econtwitter.net/tags/healtheconomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>healtheconomics</span></a> <a href="https://econtwitter.net/tags/healthpolicy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>healthpolicy</span></a> <a href="https://econtwitter.net/tags/registries" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>registries</span></a><br><a href="https://econtwitter.net/tags/healthoutcomes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>healthoutcomes</span></a> </p><p>full text: <a href="https://bit.ly/3HO5nNM" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="">bit.ly/3HO5nNM</span><span class="invisible"></span></a></p><p><a href="https://www.nature.com/articles/s41591-023-02207-9" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nature.com/articles/s41591-023</span><span class="invisible">-02207-9</span></a></p>
National Grey Literature Colle<p>Cannabis-based products for medicinal use: Patient registry - NHS England</p><p><a href="https://mastodonapp.uk/tags/clinical_governance" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>clinical_governance</span></a> <a href="https://mastodonapp.uk/tags/prescribing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>prescribing</span></a> <a href="https://mastodonapp.uk/tags/cannabis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cannabis</span></a> <a href="https://mastodonapp.uk/tags/registries" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>registries</span></a> <a href="https://mastodonapp.uk/tags/pharmacy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pharmacy</span></a> <a href="https://mastodonapp.uk/tags/greylit" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>greylit</span></a> <a href="https://mastodonapp.uk/tags/grey_literature" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>grey_literature</span></a> <a href="https://mastodonapp.uk/tags/nglc" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>nglc</span></a> </p><p><a href="https://tinyurl.com/nglc22112419" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="">tinyurl.com/nglc22112419</span><span class="invisible"></span></a></p>