Chronic Illness Humor Funny<p>Source: postively_chronic on Insta</p><p><a href="https://mastodon.social/tags/rarediseaseday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseaseday</span></a> <a href="https://mastodon.social/tags/rarediseaseday2025" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseaseday2025</span></a> <a href="https://mastodon.social/tags/rarediseases" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseases</span></a> <a href="https://mastodon.social/tags/raredisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>raredisease</span></a></p>
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#RareDiseaseDay
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Knowable Magazine<p>Amyloid plaque can build up in body organs other than the brain. The resulting diseases — AL amyloidosis, ATTR amyloidosis and more — cause much suffering. <a href="https://mstdn.science/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a></p><p><a href="https://knowablemagazine.org/content/article/health-disease/2023/seeking-treatments-for-amyloidosis" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">knowablemagazine.org/content/a</span><span class="invisible">rticle/health-disease/2023/seeking-treatments-for-amyloidosis</span></a></p><p><a href="https://mstdn.science/tags/KnowableMagazine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>KnowableMagazine</span></a><br><a href="https://mstdn.science/tags/ScienceMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ScienceMastodon</span></a></p>
CaoimhínBlood spots
Werner Kratz<p>Heute ist der Rare Disease Day, und morgen ist die jährliche Veranstaltung von ProRaris hierzu in Luzern. <a href="https://troet.cafe/tags/RareDisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDisease</span></a> <a href="https://troet.cafe/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a> <a href="https://troet.cafe/tags/rarediseaseday2025" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseaseday2025</span></a> <a href="https://troet.cafe/tags/Luzern" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Luzern</span></a> <a href="https://troet.cafe/tags/Schweiz" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Schweiz</span></a></p>
Thekla Kluttig<p>Heute ist der <a href="https://fedihum.org/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a>, der Tag der Seltenen Erkrankungen, jährlich am 28.02. <br>Eine davon ist das <a href="https://fedihum.org/tags/GuillainBarreSyndrom" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GuillainBarreSyndrom</span></a> - 1 bis 2 Fälle pro 100.000 im Jahr. Daher auch oft länger nicht erkannt. <br>Selten, bis es Dich trifft. Daher: <a href="https://fedihum.org/tags/Barrierefreiheit" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Barrierefreiheit</span></a> geht alle an, früher oder später.<br><a href="https://www.achse-online.de/de/was_tut_ACHSE/tag_der_seltenen/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">achse-online.de/de/was_tut_ACH</span><span class="invisible">SE/tag_der_seltenen/</span></a></p>
Domando Al Lobo 🐺<p><a href="https://mastodon.social/tags/DiaMundialEnfermedadesRaras" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DiaMundialEnfermedadesRaras</span></a><br>Día perfecto para ver el <a href="https://mastodon.social/tags/documental" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>documental</span></a> de Noah Higón: "Noah, nada es Imposible" en @/rtveplay.<br>Gracias @/nh487 y a todos los implicados de un modo u otro en la visibilidad, apoyo, tratamientos y sobretodo <a href="https://mastodon.social/tags/pacientes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pacientes</span></a> 💚</p><p><a href="https://mastodon.social/tags/28Febrero" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>28Febrero</span></a> <a href="https://mastodon.social/tags/EnfermedadesRaras" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EnfermedadesRaras</span></a> <a href="https://mastodon.social/tags/investigaci%C3%B3n" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>investigación</span></a> <a href="https://mastodon.social/tags/SinCienciaNoHayFuturo" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SinCienciaNoHayFuturo</span></a><br><a href="https://mastodon.social/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a> <a href="https://mastodon.social/tags/RareDiseases" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseases</span></a></p>
Nathan Dyer<p>I'm told that today is <a href="https://social.nathandyer.me/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a> ❤️💙🦓 IgA Nephropathy is a rare disease, but that still means 60,000 people in the U.S. alone live with it (including me!) <a href="https://social.nathandyer.me/tags/IgANFoundation" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>IgANFoundation</span></a></p>
Elizabeth Fraser<p>28 Feb is <a href="https://mastodon.world/tags/rarediseaseday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseaseday</span></a> In UK, pop ~6.34M, I’m one of ~8,400 with Addison’s Disease. There’s no cure. With lifelong treatment it’s manageable, but can, & has been life threatening. I’m also an artist, these prints, made into a freestanding zigzag bookart are 1st science based work I created. Now i’ve a growing body of sci-art. Funny where a strange diagnosis can lead. <a href="https://mastodon.world/tags/Addisonsdisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Addisonsdisease</span></a></p>
Cute Calendar<p>Feb 28: Today is Rare Disease Day! <a href="https://www.cute-calendar.com/46606" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">cute-calendar.com/46606</span><span class="invisible"></span></a> <a href="https://mastodon.social/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a></p>
Mastodon Trends South Africa<p>The following hashtags are trending across South African Mastodon instances:</p><p><a href="https://mastodon.africa/tags/wildlife" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>wildlife</span></a><br><a href="https://mastodon.africa/tags/krugernationalpark" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>krugernationalpark</span></a><br><a href="https://mastodon.africa/tags/southafrica" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>southafrica</span></a><br><a href="https://mastodon.africa/tags/pinkfloyd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pinkfloyd</span></a><br><a href="https://mastodon.africa/tags/thewall" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>thewall</span></a><br><a href="https://mastodon.africa/tags/softwaredevelopment" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>softwaredevelopment</span></a><br><a href="https://mastodon.africa/tags/weekend" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>weekend</span></a><br><a href="https://mastodon.africa/tags/rarediseaseday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseaseday</span></a><br><a href="https://mastodon.africa/tags/rarediseases" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseases</span></a><br><a href="https://mastodon.africa/tags/morethanyoucanimagine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>morethanyoucanimagine</span></a></p><p>Based on recent posts made by non-automated accounts. Posts with more boosts, favourites, and replies are weighted higher.</p>
Knowable Magazine<p>Genetic conditions like Dravet syndrome, which causes severe childhood epilepsy, are hard to tackle with traditional gene therapy. New approaches in the works include using antisense therapy to boost mRNA splicing. <a href="https://mstdn.science/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a></p><p><a href="https://knowablemagazine.org/content/article/health-disease/2023/hope-for-haploinsufficiency-diseases" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">knowablemagazine.org/content/a</span><span class="invisible">rticle/health-disease/2023/hope-for-haploinsufficiency-diseases</span></a></p><p><a href="https://mstdn.science/tags/KnowableMagazine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>KnowableMagazine</span></a><br><a href="https://mstdn.science/tags/ScienceMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ScienceMastodon</span></a></p>
Mastodon Trends South Africa<p>The following hashtags are trending across South African Mastodon instances:</p><p><a href="https://mastodon.africa/tags/wildlife" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>wildlife</span></a><br><a href="https://mastodon.africa/tags/krugernationalpark" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>krugernationalpark</span></a><br><a href="https://mastodon.africa/tags/southafrica" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>southafrica</span></a><br><a href="https://mastodon.africa/tags/pinkfloyd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pinkfloyd</span></a><br><a href="https://mastodon.africa/tags/thewall" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>thewall</span></a><br><a href="https://mastodon.africa/tags/softwaredevelopment" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>softwaredevelopment</span></a><br><a href="https://mastodon.africa/tags/weekend" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>weekend</span></a><br><a href="https://mastodon.africa/tags/rarediseaseday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseaseday</span></a><br><a href="https://mastodon.africa/tags/rarediseases" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseases</span></a><br><a href="https://mastodon.africa/tags/morethanyoucanimagine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>morethanyoucanimagine</span></a></p><p>Based on recent posts made by non-automated accounts. Posts with more boosts, favourites, and replies are weighted higher.</p>
Vivienne Dunstan<p>Rare Disease Day 2025 - some thoughts as a vasculitis patient. My annual post about Rare Disease Day, including links to further thoughts from me about related topics. <a href="https://vivsacademicblog.wordpress.com/2025/02/28/rare-disease-day-2025-some-thoughts-as-a-vasculitis-patient/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">vivsacademicblog.wordpress.com</span><span class="invisible">/2025/02/28/rare-disease-day-2025-some-thoughts-as-a-vasculitis-patient/</span></a> <a href="https://mastodon.scot/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a> <a href="https://mastodon.scot/tags/health" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>health</span></a> <a href="https://mastodon.scot/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://mastodon.scot/tags/NHS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NHS</span></a> <a href="https://mastodon.scot/tags/medicine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>medicine</span></a> <a href="https://mastodon.scot/tags/vasculitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>vasculitis</span></a></p>
poconnor<p>I’m one of many living with PKU, a rare disease. </p><p>Rare Disease Day is observed every year on 28 February (or 29 February in leap years). The day serves as a powerful focal point, driving advocacy efforts at local, national, and international levels.</p><p>Today, I will be joining an NHS event aimed at raising awareness of rare disease among medical staff.</p><p>Hope you all have a great day, and let me know what you are up to.<br><a href="https://pkutalk.com/tags/PKU" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PKU</span></a> <a href="https://pkutalk.com/tags/phenylketonuria" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>phenylketonuria</span></a> <a href="https://pkutalk.com/tags/LivingWithPKU" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LivingWithPKU</span></a> <a href="https://pkutalk.com/tags/raredisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>raredisease</span></a> <a href="https://pkutalk.com/tags/rarediseaseday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseaseday</span></a></p>
Mastodon Trends South Africa<p>The following hashtags are trending across South African Mastodon instances:</p><p><a href="https://mastodon.africa/tags/wildlife" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>wildlife</span></a><br><a href="https://mastodon.africa/tags/krugernationalpark" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>krugernationalpark</span></a><br><a href="https://mastodon.africa/tags/southafrica" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>southafrica</span></a><br><a href="https://mastodon.africa/tags/pinkfloyd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pinkfloyd</span></a><br><a href="https://mastodon.africa/tags/thewall" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>thewall</span></a><br><a href="https://mastodon.africa/tags/softwaredevelopment" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>softwaredevelopment</span></a><br><a href="https://mastodon.africa/tags/weekend" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>weekend</span></a><br><a href="https://mastodon.africa/tags/rarediseaseday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseaseday</span></a><br><a href="https://mastodon.africa/tags/rarediseases" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseases</span></a><br><a href="https://mastodon.africa/tags/morethanyoucanimagine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>morethanyoucanimagine</span></a></p><p>Based on recent posts made by non-automated accounts. Posts with more boosts, favourites, and replies are weighted higher.</p>
Paul-Ehrlich-Institut<p>Der letzte Tag im Februar ist jährlich der Tag der seltenen Erkrankungen (<a href="https://social.bund.de/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a>), ein Aktionstag, der das Bewusstsein für seltene Krankheiten weltweit schärfen soll. <br>Mehr erfahren 👉 <a href="https://www.pei.de/DE/newsroom/hp-meldungen/2025/250228-tag-der-seltenen-erkrankungen.html" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">pei.de/DE/newsroom/hp-meldunge</span><span class="invisible">n/2025/250228-tag-der-seltenen-erkrankungen.html</span></a></p>
jak from far away<p><a href="https://chaos.social/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a> 2025 :disability_flag:<br> :BoostOK:</p>
Mastodon Trends South Africa<p>The following hashtags are trending across South African Mastodon instances:</p><p><a href="https://mastodon.africa/tags/wildlife" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>wildlife</span></a><br><a href="https://mastodon.africa/tags/krugernationalpark" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>krugernationalpark</span></a><br><a href="https://mastodon.africa/tags/southafrica" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>southafrica</span></a><br><a href="https://mastodon.africa/tags/pinkfloyd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pinkfloyd</span></a><br><a href="https://mastodon.africa/tags/thewall" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>thewall</span></a><br><a href="https://mastodon.africa/tags/softwaredevelopment" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>softwaredevelopment</span></a><br><a href="https://mastodon.africa/tags/weekend" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>weekend</span></a><br><a href="https://mastodon.africa/tags/rarediseaseday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseaseday</span></a><br><a href="https://mastodon.africa/tags/rarediseases" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rarediseases</span></a><br><a href="https://mastodon.africa/tags/morethanyoucanimagine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>morethanyoucanimagine</span></a></p><p>Based on recent posts made by non-automated accounts. Posts with more boosts, favourites, and replies are weighted higher.</p>
Innovative Health Initiative<p>📯 Just published! The February IHI newsletter at <a href="https://europa.eu/!cNp8tC" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">europa.eu/!cNp8tC</span><span class="invisible"></span></a><br>✅ How our projects are helping to make the <a href="https://mastodon.social/tags/EHDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EHDS</span></a> a reality<br>✅ Our MACUSTAR project on eye disease received a letter of support from the EMA<br>✅ AMR project COMBINE trained an <a href="https://mastodon.social/tags/AI" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AI</span></a> model to improve the selection of compounds that can fight multi-drug resistant bacteria<br>✅ We meet new IHI projects on <a href="https://mastodon.social/tags/RareDiseases" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseases</span></a>, greener drug manufacture & more patient friendly <a href="https://mastodon.social/tags/BloodTests" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>BloodTests</span></a><br><a href="https://mastodon.social/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a> <a href="https://mastodon.social/tags/IHITransformingHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>IHITransformingHealth</span></a> <a href="https://mastodon.social/tags/HorizonEU" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>HorizonEU</span></a></p>
Charité Berlin<p>In Deutschland leben etwa 4 Millionen Menschen mit einer seltenen Erkrankung. Ihnen gilt nicht nur heute am <a href="https://wisskomm.social/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RareDiseaseDay</span></a> unsere Aufmerksamkeit: Das Berliner Centrum für Seltene Erkrankungen der <a href="https://wisskomm.social/tags/Charit%C3%A9Berlin" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CharitéBerlin</span></a> bietet Betroffenen eine Anlaufstelle. <a href="https://www.charite.de/klinikum/themen_klinikum/berliner_centrum_fuer_seltene_erkrankungen_buendelt_expertise" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">charite.de/klinikum/themen_kli</span><span class="invisible">nikum/berliner_centrum_fuer_seltene_erkrankungen_buendelt_expertise</span></a> </p><p><a href="https://wisskomm.social/tags/Medizin" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Medizin</span></a> <a href="https://wisskomm.social/tags/Gesundheit" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Gesundheit</span></a> <a href="https://wisskomm.social/tags/Forschung" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Forschung</span></a></p>
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