Colin-Roy Hunter<p>The Coroner of the <a href="https://mstdn.social/tags/MaeveInquest" class="mention hashtag" rel="tag">#<span>MaeveInquest</span></a> has issued a REGULATION 28: REPORT TO PREVENT FUTURE DEATHS sent to inter alia the representative of <a href="https://mstdn.social/tags/UKgov" class="mention hashtag" rel="tag">#<span>UKgov</span></a> & <a href="https://mstdn.social/tags/NHSEngland" class="mention hashtag" rel="tag">#<span>NHSEngland</span></a>. The link is to the three-page document, which is succinct and clear.</p><p><a href="https://mstdn.social/tags/SevereME" class="mention hashtag" rel="tag">#<span>SevereME</span></a> <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/CFS" class="mention hashtag" rel="tag">#<span>CFS</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="tag">#<span>PVFS</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a></p><p>Link to <a href="https://mstdn.social/tags/Virology" class="mention hashtag" rel="tag">#<span>Virology</span></a> blog:</p><p><a href="https://virology.ws/wp-content/uploads/2024/10/Maeve-Boothby-ONeill-regulation-28-report.pdf" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="ellipsis">virology.ws/wp-content/uploads</span><span class="invisible">/2024/10/Maeve-Boothby-ONeill-regulation-28-report.pdf</span></a></p>
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#postviraldisorder
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Colin-Roy Hunter<p>It is difficult to believe that <a href="https://mstdn.social/tags/neoliberal" class="mention hashtag" rel="tag">#<span>neoliberal</span></a> <a href="https://mstdn.social/tags/Labour" class="mention hashtag" rel="tag">#<span>Labour</span></a>, that is <a href="https://mstdn.social/tags/UKgov" class="mention hashtag" rel="tag">#<span>UKgov</span></a>, will listen let alone take action needed within the <a href="https://mstdn.social/tags/NHS" class="mention hashtag" rel="tag">#<span>NHS</span></a>!</p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/CFS" class="mention hashtag" rel="tag">#<span>CFS</span></a> <a href="https://mstdn.social/tags/Covid" class="mention hashtag" rel="tag">#<span>Covid</span></a> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="tag">#<span>PVFS</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a></p><p>Link to <a href="https://mstdn.social/tags/BMJ" class="mention hashtag" rel="tag">#<span>BMJ</span></a> :</p><p><a href="https://ebn.bmj.com/content/early/2024/08/29/ebnurs-2024-104177" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="ellipsis">ebn.bmj.com/content/early/2024</span><span class="invisible">/08/29/ebnurs-2024-104177</span></a></p>
Colin-Roy Hunter<p>Please consider signing this petition to force <a href="https://mstdn.social/tags/Cochrane" class="mention hashtag" rel="tag">#<span>Cochrane</span></a> to fulfil their promises and to stop delaying & obfuscating.</p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/CFS" class="mention hashtag" rel="tag">#<span>CFS</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="tag">#<span>PVFS</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a></p><p><a href="https://chng.it/bNj7W9bhst" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="">chng.it/bNj7W9bhst</span><span class="invisible"></span></a></p>
Colin-Roy Hunter<p><a href="https://mstdn.social/tags/LadyShambles" class="mention hashtag" rel="tag">#<span>LadyShambles</span></a>’ take on the <a href="https://mstdn.social/tags/MaeveInquest" class="mention hashtag" rel="tag">#<span>MaeveInquest</span></a> result, per her worthy comment to @DavidTuller1 & @ValeriEliotSmit’s overview & commentary:</p><p>1. M.E. Is a ‘physical’ (as opposed to psychological) disease;</p><p>2. M.E. can cause death;</p><p>3. <a href="https://mstdn.social/tags/MEKills" class="mention hashtag" rel="tag">#<span>MEKills</span></a> </p><p>Link to <a href="https://mstdn.social/tags/Virology" class="mention hashtag" rel="tag">#<span>Virology</span></a> blog:</p><p><a href="https://virology.ws/2024/08/12/trial-by-error-valerie-eliot-smith-on-the-inquest-findings/?sfnsn=scwspwa" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="ellipsis">virology.ws/2024/08/12/trial-b</span><span class="invisible">y-error-valerie-eliot-smith-on-the-inquest-findings/?sfnsn=scwspwa</span></a></p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/CFS" class="mention hashtag" rel="tag">#<span>CFS</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="tag">#<span>PVFS</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a></p>
Colin-Roy Hunter<p>Ongoing failures by <a href="https://mstdn.social/tags/NHS" class="mention hashtag" rel="tag">#<span>NHS</span></a> towards <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a>, especially those of us with <a href="https://mstdn.social/tags/SevereME" class="mention hashtag" rel="tag">#<span>SevereME</span></a> or <a href="https://mstdn.social/tags/VerySevereME" class="mention hashtag" rel="tag">#<span>VerySevereME</span></a>, really do need the UK ME charities to step up their game. My suggestion is a national <a href="https://mstdn.social/tags/BuddySystem" class="mention hashtag" rel="tag">#<span>BuddySystem</span></a>.</p><p>Link to <a href="https://mstdn.social/tags/Blogger" class="mention hashtag" rel="tag">#<span>Blogger</span></a>: <a href="https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="ellipsis">crippledqueeranglo-europeanran</span><span class="invisible">ter.blogspot.com/2023/05/pink-triangles-blue-triangles.html</span></a></p><p><a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/CFS" class="mention hashtag" rel="tag">#<span>CFS</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <br /><a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="tag">#<span>PVFS</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a><br /><a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a></p>
Colin-Roy Hunter<p>Today, 8th August, is <a href="https://mstdn.social/tags/SevereMEDay" class="mention hashtag" rel="tag">#<span>SevereMEDay</span></a> aka <a href="https://mstdn.social/tags/SevereMEAwarenessDay" class="mention hashtag" rel="tag">#<span>SevereMEAwarenessDay</span></a>.</p><p>I have actually managed to write a blog-post this year!</p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/SevereME" class="mention hashtag" rel="tag">#<span>SevereME</span></a> <a href="https://mstdn.social/tags/VerySevereME" class="mention hashtag" rel="tag">#<span>VerySevereME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p><p>Link to Blogger:</p><p><a href="https://crippledqueeranglo-europeanranter.blogspot.com/2024/08/severe-me-day-2024-funcap55.html" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="ellipsis">crippledqueeranglo-europeanran</span><span class="invisible">ter.blogspot.com/2024/08/severe-me-day-2024-funcap55.html</span></a></p>
Colin-Roy Hunter<p>Recognised by <a href="https://mstdn.social/tags/WHO" class="mention hashtag" rel="tag">#<span>WHO</span></a> since 1969 as a <a href="https://mstdn.social/tags/DiseaseOfTheNervousSystem" class="mention hashtag" rel="tag">#<span>DiseaseOfTheNervousSystem</span></a>:</p><p><a href="https://mstdn.social/tags/ICD10" class="mention hashtag" rel="tag">#<span>ICD10</span></a> <a href="https://mstdn.social/tags/G93point3" class="mention hashtag" rel="tag">#<span>G93point3</span></a></p><p><a href="https://mstdn.social/tags/ICD11" class="mention hashtag" rel="tag">#<span>ICD11</span></a> <a href="https://mstdn.social/tags/8E49" class="mention hashtag" rel="tag">#<span>8E49</span></a></p><p>Despite efforts of the <a href="https://mstdn.social/tags/BioPsychoSocial" class="mention hashtag" rel="tag">#<span>BioPsychoSocial</span></a> brigade to have it reclassified, it remains categorised as a neurological illness.</p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/CFS" class="mention hashtag" rel="tag">#<span>CFS</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="tag">#<span>PVFS</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p>
Colin-Roy Hunter<p>Re <a href="https://mstdn.social/tags/MaeveInquest" class="mention hashtag" rel="tag">#<span>MaeveInquest</span></a> : </p><p>I should have anticipated that all involved would have mentioned how they had since done various courses etc. in order to raise their awareness, knowledge & expertise of <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a>. If they did, I missed mention… 😡</p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p>
Colin-Roy Hunter<p>May has been <a href="https://mstdn.social/tags/InternationalMEAwarenessMonth" class="mention hashtag" rel="tag">#<span>InternationalMEAwarenessMonth</span></a> <a href="https://mstdn.social/tags/MEAwarenessMonth" class="mention hashtag" rel="tag">#<span>MEAwarenessMonth</span></a>, but, alas, I have not been well enough to post nor share much this year. Here is a <a href="https://mstdn.social/tags/poem" class="mention hashtag" rel="tag">#<span>poem</span></a> from a decade ago. Matters have ameliorated slightly in that time, in that awareness has been raised and the issues are within the sights of politicos across the Globe due to <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a>.</p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p>
Colin-Roy Hunter<p>Couldn’t find <a href="https://mstdn.social/tags/TheChronicCollaboration" class="mention hashtag" rel="tag">#<span>TheChronicCollaboration</span></a> are on here, but this is an urgent letter - action prior to 30th April for a UK Parliamentary debate. If you are a <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> or a carer or an ally, please consider signing the letter - and recall to send the email confirmation!</p><p><a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p><p><a href="https://openletter.earth/sajid-javid-please-raise-very-severe-and-severe-me-cases-in-your-westminster-hall-debate-a0d1b905" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="ellipsis">openletter.earth/sajid-javid-p</span><span class="invisible">lease-raise-very-severe-and-severe-me-cases-in-your-westminster-hall-debate-a0d1b905</span></a></p>
Colin-Roy Hunter<p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="tag">#<span>PVFS</span></a> <a href="https://mstdn.social/tags/pwLC" class="mention hashtag" rel="tag">#<span>pwLC</span></a> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p><p><a href="https://mstdn.social/tags/DecodeME" class="mention hashtag" rel="tag">#<span>DecodeME</span></a> one week left to enrol!</p>
Colin-Roy Hunter<p>Less than two weeks left for <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> / <a href="https://mstdn.social/tags/pwLC" class="mention hashtag" rel="tag">#<span>pwLC</span></a> + M.E. to sign up to participate in the once-in-a-generation <a href="https://mstdn.social/tags/DecodeME" class="mention hashtag" rel="tag">#<span>DecodeME</span></a> research. Please consider enrolling.</p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="tag">#<span>PVFS</span></a> <a href="https://mstdn.social/tags/pwLC" class="mention hashtag" rel="tag">#<span>pwLC</span></a> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p>
Colin-Roy Hunter<p>Just finished sorting through the last of the stuff removed from my bed-cell one year ago in order to deep-cleanse my room.</p><p>And thus a reminder it’s time to re-do! 😂</p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/ELCI" class="mention hashtag" rel="tag">#<span>ELCI</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p>
Colin-Roy Hunter<p>My blog-post for this year’s M.E. events, on what the charities could do to help us.</p><p><a href="https://mstdn.social/tags/InternationalMEAwarenessMonth" class="mention hashtag" rel="tag">#<span>InternationalMEAwarenessMonth</span></a> <a href="https://mstdn.social/tags/MEAwarenessMonth" class="mention hashtag" rel="tag">#<span>MEAwarenessMonth</span></a></p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a> </p><p><a href="https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="ellipsis">crippledqueeranglo-europeanran</span><span class="invisible">ter.blogspot.com/2023/05/pink-triangles-blue-triangles.html</span></a></p>
Colin-Roy Hunter<p>Whether my <a href="https://mstdn.social/tags/Fibromyalgia" class="mention hashtag" rel="tag">#<span>Fibromyalgia</span></a> &/or my <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a>, my body is always in <a href="https://mstdn.social/tags/pain" class="mention hashtag" rel="tag">#<span>pain</span></a> (the visualisation below): differing degrees; different places. Always in pain. And no, even with <a href="https://mstdn.social/tags/painkillers" class="mention hashtag" rel="tag">#<span>painkillers</span></a>, the pain never totally absents itself! </p><p><a href="https://mstdn.social/tags/InternationalMEAwarenessMonth" class="mention hashtag" rel="tag">#<span>InternationalMEAwarenessMonth</span></a> <a href="https://mstdn.social/tags/MEAwarenessMonth" class="mention hashtag" rel="tag">#<span>MEAwarenessMonth</span></a></p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p>
Colin-Roy Hunter<p>I am not very techie, so uncertain whether this is a ten-minute-or-so podcast or a radio-broadcast extract. It is all conducted in, for the most part, very clear Austrian-German. The subject matter is the background to the M.E. demonstration in central Vienna.</p><p><a href="https://mstdn.social/tags/InternationalMEAwarenessMonth" class="mention hashtag" rel="tag">#<span>InternationalMEAwarenessMonth</span></a> <a href="https://mstdn.social/tags/MEAwarenessMonth" class="mention hashtag" rel="tag">#<span>MEAwarenessMonth</span></a></p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p><p><a href="https://www.technikumone.at/internationaler-me-cfs-tag/" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://www.</span><span class="ellipsis">technikumone.at/internationale</span><span class="invisible">r-me-cfs-tag/</span></a></p>
Colin-Roy Hunter<p>@cjfriess@home.social Signature 8276. If the petition reaches 10,000 <a href="https://mstdn.social/tags/UKgov" class="mention hashtag" rel="tag">#<span>UKgov</span></a> must respond.</p><p><a href="https://mstdn.social/tags/InternationalMEAwarenessMonth" class="mention hashtag" rel="tag">#<span>InternationalMEAwarenessMonth</span></a> <a href="https://mstdn.social/tags/MEAwarenessMonth" class="mention hashtag" rel="tag">#<span>MEAwarenessMonth</span></a></p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p>
Colin-Roy Hunter<p>Herewith this year’s blog-post for <a href="https://mstdn.social/tags/InternationalMEAwarenessDay" class="mention hashtag" rel="tag">#<span>InternationalMEAwarenessDay</span></a> <a href="https://mstdn.social/tags/MEAwarenessDay" class="mention hashtag" rel="tag">#<span>MEAwarenessDay</span></a>, entitled “Pink Triangles, Blue Triangles” on the theme of pro-active, pragmatic support for individual people with M.E. (<a href="https://mstdn.social/tags/PwME" class="mention hashtag" rel="tag">#<span>PwME</span></a> ).</p><p><a href="https://mstdn.social/tags/InternationalMEAwarenessMonth" class="mention hashtag" rel="tag">#<span>InternationalMEAwarenessMonth</span></a> <a href="https://mstdn.social/tags/MEAwarenessMonth" class="mention hashtag" rel="tag">#<span>MEAwarenessMonth</span></a></p><p><a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="tag">#<span>PostViralFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p><p><a href="https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="ellipsis">crippledqueeranglo-europeanran</span><span class="invisible">ter.blogspot.com/2023/05/pink-triangles-blue-triangles.html</span></a></p>
Colin-Roy Hunter<p>Per <a href="https://mstdn.social/tags/ONS" class="mention hashtag" rel="tag">#<span>ONS</span></a>:</p><p>“An estimated 1.9 million people living in private households in the UK (2.9% of the population) were experiencing self-reported <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> (symptoms continuing for more than four weeks after the first confirmed or suspected <a href="https://mstdn.social/tags/coronavirus" class="mention hashtag" rel="tag">#<span>coronavirus</span></a> (<a href="https://mstdn.social/tags/COVID19" class="mention hashtag" rel="tag">#<span>COVID19</span></a>) infection … as of 5 March 2023”</p><p><a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p><p><a href="https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddiseases/bulletins/prevalenceofongoingsymptomsfollowingcoronaviruscovid19infectionintheuk/30march2023" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://www.</span><span class="ellipsis">ons.gov.uk/peoplepopulationand</span><span class="invisible">community/healthandsocialcare/conditionsanddiseases/bulletins/prevalenceofongoingsymptomsfollowingcoronaviruscovid19infectionintheuk/30march2023</span></a></p>
Colin-Roy Hunter<p><a href="https://mstdn.social/tags/BhupreshPristy" class="mention hashtag" rel="tag">#<span>BhupreshPristy</span></a> (following earlier comments I previously tooted here) tweeted on 30.03.23:</p><p>“<a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a> <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> You don’t have to wait long. We will present our work in Berlin & Hinxton meeting. As always, we believe in functional & meaningful, data driven biomedical research that can make sense for understanding complex molecular processes. Let’s dive deeper this time.”</p><p><a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="tag">#<span>pwME</span></a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="tag">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mstdn.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="tag">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mstdn.social/tags/PostViralDisorder" class="mention hashtag" rel="tag">#<span>PostViralDisorder</span></a></p>
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