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#notdeadyet

4 posts1 participant0 posts today
Continued thread

So yeah, I'm still here. I'm trying to get rid of the weight the treatment has given me, unsuccessfully.

I have no sex drive at all, my body hair has changed, my self image is appalling, my back hurts all the time and my body temperature is out of control. Hot flushes, yay.

But I'm still here. Fuck cancer.

Continued thread

Between the three of them, I'm still here

Chemotherapy is awful.
The injections for the testosterone suppression are awful.
The side effects of both are awful.

But I'm still here. If I'd had no symptoms, I wouldn't be. Pretty stark.

As is seeing the box for "palliative treatment, not curable" ticked on your treatment consent form.

Continued thread

... And thus started a load of clinical investigations, which showed that I had a very enlarged prostate (the size of an orange), I didn't have intrusions into my bladder or bowel, but I did have masses in my lymph system. Big masses. Serious, life threatening masses.

But! Nothing in my bones, unlike Sir Chris Hoy. So no radiotherapy.

However, it did mean:
* Testosterone suppression
* Chemotherapy
* Tablets for the rest of my life

One year to the day since I got told of a numeric result of a blood test, initially with no context.

"1206", I was told, "that's higher than usual". When I asked what usual was, "anything over 5 is problematic".

The units were ng/ml, of a compound called PSA. Prostate Specific Antigen.

When asked what that meant, the reply was "that almost certainly means advanced metastatic prostate cancer".

Oh. Crap.

Replied in thread

@Bookworm33333 @galad @GottaLaff

Individually, sure. If aggressive lifestyle advertising drives suicide rates up five percent, that's a lot of people who didn't need to die. God forbid they get ’clever' and start trying to sabotage/undermine suicide help lines ala the 'crisis center' model.

I never really thought about this angle until a disabled friend involved in #notdeadyet pulled me along the train of thought.

Je me demande si toutes les personnes qui soutiennent activement en France une nouvelle législation concernant l'euthanasie, au pretexte de la liberté individuelle, ou de la (soi disant) insuffisance du cadre législatif actuel, ont pris la peine de rédiger leurs directives anticipées et de désigner leur personne de confiance ?

(Bien sûr c'est une question rhétorique)

#gettingbettereveryday
.
#NotDeadYet
.
I have been going through it lately (last 2 years) and am finally starting to tread Water.

Going to be dropping a #newpodcast #newpod #new #podcast on #mentalhealth & #Trauma / #TraumaHealing in the next little bit.

#StayTuned

As well as an update on my current #Organizing #webdesign #activism & #life updates.

Full & #free #articles/poetry will be posted to #mywebsite #first and then to #substack & other platforms afterwards.

All of my #writing #poetry will never be behind a #paywall

**PRRIOD**

It will always be available on a #paywhatyouwant #ifyouwant