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#ehlersdanlos

1 post1 participant1 post today

How do you know if you've popped a rib "out of socket"?

I sneezed this morning and thought I pulled a muscle, but the pain is intense and hasn't let up all day. I started to wonder if it was something more when I sneezed again this evening, and there was a very clear popping sensation accompanied by even more intense pain. It's right around the area where my rib would meet the cartilage next to my sternum.

I've been unable to cough effectively all day long. Every cough, even a mild one, is super painful. Meanwhile, I feel like I'm suffocating or drowning because I can't clear my airway effectively.

If it is a dislocated rib, what do I do? How do I fix it or at least get the pain to ease up? How do I stop this from happening again?

#EhlersDanlos
#EhlersDanlosSyndrome
#EDS
#dislocation
#ChestPain
@eds

Max needs to work on his posture.

He’s got the right idea… sometimes…

When he’s gardening, he knows exactly what to do: align the head and hips, enagage the core, and maintain an s-curve. But when he’s chillin’, it all goes out the window. It’s like good posture is his old friend that he catches up with occasionally and completely forgets about until the next hang-out.

But don’t worry, Aria judges him for it so you don’t have to.

💬 Do you or a friend do this? Tell us about it in the comments!

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#SheDontEvenSmoke #Gardening #fourtwenty #Posture #devilslettuce #ADHD #Neurodivergence #EhlersDanlos #PoorPosture #420 #Stoner #StonerComics #StonerHumor

#EhlersDanlos #hypermobility #GeneticDisorders

Excerpt: "As someone diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS) recently, I was intrigued to discover Francesca dePasquale's Hypermobile Musician, a resource aimed at educating and supporting teachers and musicians about hypermobility. I spoke with Francesca about her experiences and the importance of raising awareness around hypermobility in the music industry. Read the full interview below."

prestomusic.com/sheet-music/ar

Presto MusicFrancesca dePasquale: Hypermobile MusicianFrancesca dePasquale discusses her resource, Hypermobile Musician, and the importance of raising awareness around hypermobility in the music industry. 
Continued thread

About 8–10 years ago, my #EhlersDanlos doctor (Dr F) told me to take up #pilates (starting with private lessons so the instructor can ensure good form since the EDS makes me more injury-prone). She said #yoga would be acceptable too (NOT hot yoga!!!), but Pilates would be safer.

In April, I was taking a #tango lesson with Germán Filipeli, and he said I needed more core strength to do volcadas and should take up Pilates.

Weak stabilizer muscles are manifesting knee pain, so I finally started.

@hadon The issue isn't weak muscles, but fluid and tickle in my airway. If anything, people comment that my cough can be scary loud because there's so much force behind it.

Funny that you should mention strengthening abs, though. I was born with a congenital hernia above my belly button. Basically, a hole in the connective tissue where my abs were knit together. My parents made me do sit-ups as a very young child to strengthen the surrounding muscles extra, on the doctor's advice, to give additional support in that region. It's apparently a common thing for Ehlers Danlos.

I'm a bit weird in that I don't have the general weak muscle tone that is common for EDS. If anything, it's the opposite. I'm more muscled than I have any right to be, given my sedentary lifestyle. I also have never broken a bone. But I have all kinds of other traits that line up closely, including the diagnostic criteria. I think I have a weird, unrecognized variant.

#EhlersDanlos
#EDS

Anyone who has POTS -- have you ever had a situation where you weren't feeling well and that corresponded with *lower* than normal heart rate? My typical is around 80bpm resting. Currently while laying down I'm around 65bpm which is lower than I think I've ever seen my body sustain for a while. I don't know the reason for this low heart rate.

Continued thread

It's the people who've been there before who are still here. The people who still offer a call after I've canceled 100 times, the people who do nothing with me for an entire afternoon without judgement, the people who always thought I was worth it.

For the rest, I'm now fixed, get to start over the fight.

3/3

A friendly reminder to anyone who has Ehlers-Danlos or has joint hypermobility (aka "double-jointed"):

*****
Avoid the antibiotic Cipro like the plague.
*****

It can destroy your body. It weakens tendons and ligaments and makes them susceptible to abruptly bursting or snapping. The effects of the drug can be long-term. My brother took it and had to have major surgery to have a tendon reattached in his thumb. His story isn't nearly as horrible as others I have heard.

#EhlersDanlos
#EDS
#cipro
#joints
#hypermobility
#DoubleJointed
#antibiotics
#MedicalHorror

Replied in thread

@melindrea I got reprimanded so many times in school for not sitting "right" in my desk. I didn't learn till many years later that it's not normal for furniture to *hurt* you when you use it as intended, and that maybe there was more going on for me. I'm guessing all those teachers who "corrected" me still haven't learned that.