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Chronic Illness Humor Funny<a href="https://mastodon.social/tags/potsmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#potsmemes</a> <a href="https://mastodon.social/tags/autonomic" class="mention hashtag" rel="nofollow noopener" target="_blank">#autonomic</a> <a href="https://mastodon.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://mastodon.social/tags/autonomicdysfunction" class="mention hashtag" rel="nofollow noopener" target="_blank">#autonomicdysfunction</a> <a href="https://mastodon.social/tags/potshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#potshumor</a> <a href="https://mastodon.social/tags/autonomicmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#autonomicmemes</a> <a href="https://mastodon.social/tags/dysautonomiamemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomiamemes</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/nervoussystem" class="mention hashtag" rel="nofollow noopener" target="_blank">#nervoussystem</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a>

AnnaWell, not the happiest intro but I’ll cut/paste this here while I still remember then add a proper intro spoons allowing..⬇️Please <a href="https://zeroes.ca/tags/boost" class="mention hashtag" rel="nofollow noopener" target="_blank">#boost</a> and share to other platforms spoons allowing.Seems I’m desperate enough to go to the media for help. Yes, the trapped woman in the article below is me.My story: <a href="https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/" rel="nofollow noopener" translate="no" target="_blank">https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/</a>More info on how to help:: <a href="https://buymeacoffee.com/halcionandon/" rel="nofollow noopener" translate="no" target="_blank">https://buymeacoffee.com/halcionandon/</a> Beem: HalcionandonI’ve tried every level of government and they simply won’t help. - Please ask people if they have a spare room or somewhere to go. Maybe you have somewhere? - Is anybody a <a href="https://zeroes.ca/tags/DisabilityAdvocate" class="mention hashtag" rel="nofollow noopener" target="_blank">#DisabilityAdvocate</a>? <a href="https://zeroes.ca/tags/SocialWorker" class="mention hashtag" rel="nofollow noopener" target="_blank">#SocialWorker</a>? Need help.Please don’t give me contacts for domestic violence orgs. They don’t help disabled people with housing & only offer counselling. Also, that list of disability advocates going around for <a href="https://zeroes.ca/tags/Melbourne" class="mention hashtag" rel="nofollow noopener" target="_blank">#Melbourne</a> <a href="https://zeroes.ca/tags/Australia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Australia</a> (where I am) is outdated - there aren’t any in my catchment. So I’m looking for volunteers with some background.Thanks for reading<a href="https://zeroes.ca/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://zeroes.ca/tags/Hypothyroidism" class="mention hashtag" rel="nofollow noopener" target="_blank">#Hypothyroidism</a> <a href="https://zeroes.ca/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicIllness</a> <a href="https://zeroes.ca/tags/Neisvoid" class="mention hashtag" rel="nofollow noopener" target="_blank">#Neisvoid</a> <a href="https://zeroes.ca/tags/NacissisticAbuse" class="mention hashtag" rel="nofollow noopener" target="_blank">#NacissisticAbuse</a> #<a href="https://zeroes.ca/tags/Housing" class="mention hashtag" rel="nofollow noopener" target="_blank">#Housing</a> <a href="https://zeroes.ca/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dysautonomia</a> <a href="https://zeroes.ca/tags/SocialWork" class="mention hashtag" rel="nofollow noopener" target="_blank">#SocialWork</a> <a href="https://zeroes.ca/tags/MedMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#MedMastodon</a> <a href="https://zeroes.ca/tags/PWLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PWLC</a> <a href="https://zeroes.ca/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#MutualAid</a> <a href="https://zeroes.ca/tags/HumanRights" class="mention hashtag" rel="nofollow noopener" target="_blank">#HumanRights</a> <a href="https://zeroes.ca/tags/Press" class="mention hashtag" rel="nofollow noopener" target="_blank">#Press</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/neisvoid" class="u-url mention" rel="nofollow noopener" target="_blank">@neisvoid</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener" target="_blank">@disability</a> <a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener" target="_blank">@disabilityjustice</a> <a href="https://a.gup.pe/u/socialwork" class="u-url mention" rel="nofollow noopener" target="_blank">@socialwork</a> <a href="https://a.gup.pe/u/mutualaid" class="u-url mention" rel="nofollow noopener" target="_blank">@mutualaid</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener" target="_blank">@chronicillness</a>

AngryGirlKI have officially caught whatever the person in the other office had 😔 I feel like shit. And it’s flared my <a href="https://metalhead.club/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> up real bad. Great.If you are sick…stay the fuck home.<a href="https://metalhead.club/tags/StopTheSpread" class="mention hashtag" rel="nofollow noopener" target="_blank">#StopTheSpread</a>

illmarks Symptom: it feels like Cranial Pressure? <a href="https://www.illmarks.com/symptom-it-feels-like-cranial-pressure/" class="" rel="nofollow noopener" target="_blank">https://www.illmarks.com/symptom-it-feels-like-cranial-pressure/</a><a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/art/" target="_blank">#art</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/cfs/" target="_blank">#cfs</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-pain/" target="_blank">#chronicPain</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronicillness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronicpain/" target="_blank">#chronicPain</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/dysautonomia/" target="_blank">#Dysautonomia</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/headache/" target="_blank">#headache</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/long-covid/" target="_blank">#longCovid</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mcas/" target="_blank">#mcas</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/me/" target="_blank">#me</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mecfs/" target="_blank">#mecfs</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medical-art/" target="_blank">#medicalArt</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/migraine/" target="_blank">#migraine</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/millionsmissing/" target="_blank">#MillionsMissing</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwlc/" target="_blank">#pwLC</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwme/" target="_blank">#pwme</a>

A.Z. Device |Folks, if you have <a href="https://merveilles.town/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> stay inside during this heat dome. I took my dog out for less than three minutes and thought I was gonna drop.

Tom KindlonRecap for Bateman Horne Center Support Group: Love Relationships and Illness May 20, 2025<a href="https://batemanhornecenter.org/wp-content/uploads/2025/06/20250520-Support-Group-Recap.pdf" rel="nofollow noopener" translate="no" target="_blank">https://batemanhornecenter.org/wp-content/uploads/2025/06/20250520-Support-Group-Recap.pdf</a>Hashtags: <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chroniclife</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener" target="_blank">@disability</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PASC</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener" target="_blank">@fibromyalgia</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#FMS</a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener" target="_blank">#FM</a> <a href="https://disabled.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener" target="_blank">@dysautonomia</a> <a href="https://disabled.social/tags/chronicpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicpain</a> <a href="https://a.gup.pe/u/chronicpain" class="u-url mention" rel="nofollow noopener" target="_blank">@chronicpain</a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener" target="_blank">@pots</a>

MEActNOWJust posting the science today. Dysautonomias, mast cell disorders, B6 dysregulation, iron trapping and mitochondrial dysfunction are all linked. <a href="https://mastodon.social/tags/Iron" class="mention hashtag" rel="nofollow noopener" target="_blank">#Iron</a> <a href="https://mastodon.social/tags/B6" class="mention hashtag" rel="nofollow noopener" target="_blank">#B6</a> <a href="https://mastodon.social/tags/Zinc" class="mention hashtag" rel="nofollow noopener" target="_blank">#Zinc</a> <a href="https://mastodon.social/tags/Copper" class="mention hashtag" rel="nofollow noopener" target="_blank">#Copper</a> <a href="https://mastodon.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dysautonomia</a> <a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MCAS</a> content://media/external_primary/downloads/1000262000

AngryGirlK<a href="https://metalhead.club/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> be like… Hey it’s 80F outside and normal people are sweating. But you work in an air conditioned, cushy, 69F degree office so you’re gonna fucking freeze. And your hands will lose feeling until you go outside and thaw out. 🥶 I’m frozen.

Tom Kindlon5/ From "The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"<a href="https://www.thereforme.uk/p/the-importance-of-understanding-rest" rel="nofollow noopener" translate="no" target="_blank">https://www.thereforme.uk/p/the-importance-of-understanding-rest</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener" target="_blank">@dysautonomia</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener" target="_blank">@spoonies</a>

Nyx MirIf you aren’t attending an IRL or virtual protest which conflicts with it, the hybrid virtual artists talk for “And Still It Remains” a <a href="https://vis.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> Exhibit is at 1pm Colorado time.I’d love to see you there! (Just a warning though, I am Terrified of public speaking!) More info and quick zoom registration: <a href="https://www.artworksloveland.org/events/artists-talk-covid-show" rel="nofollow noopener" translate="no" target="_blank">https://www.artworksloveland.org/events/artists-talk-covid-show</a><a href="https://vis.social/tags/DisabilityArt" class="mention hashtag" rel="nofollow noopener" target="_blank">#DisabilityArt</a> <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://vis.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MCAS</a> <a href="https://vis.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://vis.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://vis.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#disability</a> <a href="https://vis.social/tags/MedicalArt" class="mention hashtag" rel="nofollow noopener" target="_blank">#MedicalArt</a> <a href="https://vis.social/tags/SciArt" class="mention hashtag" rel="nofollow noopener" target="_blank">#SciArt</a>

Chronic Illness Humor FunnyArtist: Hannah Hillam<a href="https://mastodon.social/tags/anxiety" class="mention hashtag" rel="nofollow noopener" target="_blank">#anxiety</a> <a href="https://mastodon.social/tags/anxietymemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#anxietymemes</a> <a href="https://mastodon.social/tags/anxietycomic" class="mention hashtag" rel="nofollow noopener" target="_blank">#anxietycomic</a> <a href="https://mastodon.social/tags/anxietyhumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#anxietyhumor</a> <a href="https://mastodon.social/tags/nervoussystem" class="mention hashtag" rel="nofollow noopener" target="_blank">#nervoussystem</a> <a href="https://mastodon.social/tags/nervoussystemhumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#nervoussystemhumor</a> <a href="https://mastodon.social/tags/nervoussystemmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#nervoussystemmemes</a> <a href="https://mastodon.social/tags/autonomic" class="mention hashtag" rel="nofollow noopener" target="_blank">#autonomic</a> <a href="https://mastodon.social/tags/autonomicsystem" class="mention hashtag" rel="nofollow noopener" target="_blank">#autonomicsystem</a> <a href="https://mastodon.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a>

Tom KindlonWhat Not to Say to People With Complex Chronic Illness<a href="https://www.medscape.com/viewarticle/what-not-say-people-complex-chronic-illness-2025a10006ft" rel="nofollow noopener" translate="no" target="_blank">https://www.medscape.com/viewarticle/what-not-say-people-complex-chronic-illness-2025a10006ft</a>Image is a screenshot from June 2025 AMMES e-newsletterHashtags: <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PASC</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener" target="_blank">@spoonies</a> <a href="https://disabled.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener" target="_blank">@dysautonomia</a> <a href="https://disabled.social/tags/PosturalOrthostaticTachycardiaSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#PosturalOrthostaticTachycardiaSyndrome</a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener" target="_blank">@pots</a> <a href="https://disabled.social/tags/OI" class="mention hashtag" rel="nofollow noopener" target="_blank">#OI</a> <a href="https://disabled.social/tags/OrthostaticIntolerance" class="mention hashtag" rel="nofollow noopener" target="_blank">#OrthostaticIntolerance</a>

HeidiAnyone else from Mastodonlandia attending tomorrow's Dyscourse online conference? It looks really interesting. I believe you can still register. <a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://mastodon.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://mastodon.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicIllness</a> <a href="https://dyscourse.dysproject.org/series/dyscourse-tools-for-managing/landing_page?bmid=2cf6ad6720dc&bmid_type=member&bmid=2cf6ad6720dc" rel="nofollow noopener" translate="no" target="_blank">https://dyscourse.dysproject.org/series/dyscourse-tools-for-managing/landing_page?bmid=2cf6ad6720dc&bmid_type=member&bmid=2cf6ad6720dc</a>

ahimsa"A disabled mom's message to parents: We all need help, and it's OK to ask for it"<a href="https://www.npr.org/2025/05/31/nx-s1-5414631/parenting-disability-pots-support" rel="nofollow noopener" translate="no" target="_blank">https://www.npr.org/2025/05/31/nx-s1-5414631/parenting-disability-pots-support</a>"At 28, I became disabled. My onset was so sudden and changed my life so profoundly in the course of a day. It took years to accept that I was sick, that I was disabled, and that I would never be well again."I was 29 not 28, and my onset was slower (weeks, not one day), but I can relate. It took me years to accept that I was disabled.<a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://disabled.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dysautonomia</a> <a href="https://disabled.social/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#Disability</a> <a href="https://disabled.social/tags/Books" class="mention hashtag" rel="nofollow noopener" target="_blank">#Books</a> <a href="https://disabled.social/tags/Parenting" class="mention hashtag" rel="nofollow noopener" target="_blank">#Parenting</a>

AnyaIs anybody able to recommend a good, free app to go with a heart rate monitor for android?One that pairs with an actual device, not one that uses my phone's camera.I expected this one to come with an app, but it didn't, and every other app I can find is only willing to give me a few days free trial before charging me way too much.Preferably not an exercise focused app, too. I'm not exercising, I'm just trying to be alive.EDIT:Nevermind. I'm returning the monitor.EDIT 2:Just in case anybody stumbles across this and would also like to know, I got pointed toward GadgetBridge, an app downloaded through f-droid, which helps access a lot of the functionality of smart devices without the need to sign up to a paid or data-harvesting service.Check that for compatible devices, and from there, it is relatively simple to pair the device ^_^<a href="https://eldritch.cafe/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener" target="_blank">#NEISvoid</a> <a href="https://eldritch.cafe/tags/Spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#Spoonie</a> <a href="https://eldritch.cafe/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://eldritch.cafe/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://eldritch.cafe/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://eldritch.cafe/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a>

ahimsa<a href="https://disabled.social/@tomkindlon" class="u-url mention" rel="nofollow noopener" target="_blank">@tomkindlon</a> Thanks, Tom, it's good to remind people that ambulatory wheelchair users exist! ❤️ But I didn't know that it was the majority of wheelchair users. I even have a t-shirt with this message (see attached) to try to fend off any shocked stares when I stand up.<a href="https://disabled.social/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#Disability</a> <a href="https://disabled.social/tags/DynamicDisability" class="mention hashtag" rel="nofollow noopener" target="_blank">#DynamicDisability</a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicIllness</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://disabled.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dysautonomia</a>

Niamh GarveyFirst electrolyte that I can not only tolerate, but I actually enjoy it. Huge relief as I have <a href="https://mastodon.ie/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dysautonomia</a> (thanks to <a href="https://mastodon.ie/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a>) which has lots of <a href="https://mastodon.ie/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> symptoms, plus <a href="https://mastodon.ie/tags/LongQTSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongQTSyndrome</a> heart arrythmia- all of which require higher me to have levels of electrolytes. So happy this product exists as other electrolytes make me gag due to <a href="https://mastodon.ie/tags/SensoryProcessing" class="mention hashtag" rel="nofollow noopener" target="_blank">#SensoryProcessing</a> difficulty with the texture and taste. Added bonus is it is sugar free.<a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@actuallyautistic</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/nervoussystem" class="mention hashtag" rel="nofollow noopener" target="_blank">#nervoussystem</a> <a href="https://mastodon.social/tags/anxietymemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#anxietymemes</a> <a href="https://mastodon.social/tags/anxietyhumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#anxietyhumor</a> <a href="https://mastodon.social/tags/panicdisorder" class="mention hashtag" rel="nofollow noopener" target="_blank">#panicdisorder</a> <a href="https://mastodon.social/tags/anxietydisorder" class="mention hashtag" rel="nofollow noopener" target="_blank">#anxietydisorder</a> <a href="https://mastodon.social/tags/autonomicsystem" class="mention hashtag" rel="nofollow noopener" target="_blank">#autonomicsystem</a> <a href="https://mastodon.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a>

WearyBonnie<a href="https://disabled.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dysautonomia</a> and <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> pals, I just heard about this free, online event via the POTScast:<a href="https://dyscourse.dysproject.org/series/dyscourse-tools-for-managing/landing_page" rel="nofollow noopener" translate="no" target="_blank">https://dyscourse.dysproject.org/series/dyscourse-tools-for-managing/landing_page</a>I'm only familiar with 2 of the speakers but I have a lot of respect for those 2.

genXcrone (she/her)You know when the ME/CFS Long-Covid crash knocks you down and takes out your brain, and then you're an angry lump? Yep, that.<a href="https://fandom.garden/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://fandom.garden/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://fandom.garden/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#dysautonomia</a>

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