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#Chiari

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Italian News by RSS

RaiNews by undefined
Subiaco proclamata Capitale italiana del libro 2025. L'annuncio del ministro della Cultura Giuli

Riceverà 500mila euro per l'attuazione del programma. Il conferimento del titolo, di durata annuale, è stato istituito con la legge numero 15 del 13 febbraio 2020. La prima a ricevere il riconoscimento è stata Chiari (Brescia)

Translated:
Subiaco proclaimed Italian Capital of the Book 2025. Announcement by Minister of Culture...

She will receive 500 thousand euros for the implementation of the program. The conferment of the title, which lasts for one year, was established by law number 15 of February 13, 2020. Chiari (Brescia) was the first to receive the recognition.

#Chiari #Subiaco #Brescia #Italy #minister
rainews.it/articoli/2024/12/su

RaiNews · Subiaco proclamata Capitale italiana del libro 2025. L'annuncio del ministro della Cultura GiuliBy Redazione di Rainews
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Bob K Mertz :distressedUS:

@spiegelmama
Your mention of tumor caught my attention. Look up Chiari malformation. Read everything about it and ignore the statements that say it only happens with trauma. There is a phenomenon that happens with EDS where brain tissue isn't strong enough to support it's self. You will *never* see this in a regular MRI machine (for EDS) because when you lay down gravity quits doing it's thing. If you get an open MRI where you sit during the scan you may find a herniation and this will block CSF flow and create, among other things, cranial pressure. For me they found a 2.5mm herniation and the cut off is 3mm so I technically don't have Chiari but we know this is the cause of many of my symptoms. Diamox ER twice a day is a godsend to me. As for my official diagnosis it's "pseudo-tumor" but knowing the cause is very helpful. #EhlersDanlos #Chiari

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dapprvilln

@elisol for the longest time I thought mine were related to my having decompression surgery for #chiarimalformarion. However, last year I was finally diagnosed with migraines and have had some luck with preventative and reactive medications in managing the pain.

Prior to diagnosis, I would try a hot shower, then an ice pack, then sleep if it hit (or lasted) in the evening. Focusing the temperature on the impacted area, typically the base of my skull. Other times, I would simply need to eat something carb heavy, which in my area meant toast. Spicy food helped early on before and after my #chiari diagnosis. Any excuse for some Tex-Mex.

Rarely do I reach for an ice pack these days. Hope you get some relief.

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Paul Simpson

Just watched on BBC Two, featuring some neurosurgery for at one of the amazing hospitals in Leeds. Had the same operation 26 years ago at King's College Hospital, London, under a consultant from Guy's. Brought it all back.

"Saving Lives in Leeds", Series 1: Episode 8:

bbc.co.uk/iplayer/episode/m001

BBC iPlayerSaving Lives in Leeds - Series 1: Episode 8Heart surgeon Osama Jaber must perform life-saving surgery on a 15-day-old baby.
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Paul Simpson

Cue

Live in Blackwater Valley on border of NE Returned to area I grew up in after retiring early due to impact of neuro condition called

Inspired by the 'commons' + the particular. Love power or . Head turned by

Worked in incl. + in/around SW1 then of Greenwich; University of the Arts/LCC.

🏳️‍🌈🌳

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Karrie Higgins

Intro post!

I am a writer, Intermedia artist, fabric designer, sewist, ink-maker and performance + video artist currently working on a couple of books & an NEA-funded project about a local disaster. Oh -- I also rescue cats and take care of a large feral cat colony.

Longtime #DisabilityTwitter member with #EDS, #Chiari, #Syringomyelia, #MCAS, #Epilepsy + I am #ActuallyAutistic & #nonbinary (pronouns they/she). Very glad to among friends!

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Alicia Hart

Introductory post: #Unschooling mom of two teen boys and have raised the coolest adult daughter ever. Passionate about #neurodiversity #autism #chiari #adhd + helping kids with #disabilities and those who support them.. #GenX wife to a #GenX musician so I navigate a house full of mics, amps, speakers, guitars, bass, cords, cables, and enough guitar picks to clog a dryer vent. Idolized by a 60 pound #bulldog who completely embraces the word toot in an entirely different way than the rest of us.

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